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    caroline0290's Avatar
    caroline0290 Posts: 1, Reputation: 1
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    #1

    Nov 28, 2008, 10:41 AM
    Questions about De George Syndrome
    I have a grandson, age 6, who has De George Syndrome. He has had heart surgery (before age 1). He has started school this year and is having problems with constant infections. Any ideas about how to combat the situation?
    tickle's Avatar
    tickle Posts: 23,796, Reputation: 2674
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    #2

    Nov 28, 2008, 01:34 PM

    Caroline, I had trouble finding information on your query because the name of the disease is actually diGeorges Syndrome and there is quite a bit on Google regarding symptoms/treatment etc. It actually occurs because these children are missing the 22 chromosone. There is a site, telephone no and address of a society you can call or write to. Also, please visit Google and see what else you can pick up. I wish you luck and let us know please.

    NIH/National Institute of Child Health and Human Development
    31 Center Dr
    Building 31, Room 2A32
    MSC2425
    Bethesda, MD 20892
    Tel: (301)496-5133
    Fax: (301)496-7101
    Internet: http://www.nih.gov/hichd/

    Or

    European Society for Immunodeficiencies (ESID)
    c/o Dr. Esther de Vries
    Jeroen Bosch Hospital
    Dept. Paediatrics
    P.O. Box 90153
    Hertogenbosch, 5200 ME's
    Netherlands
    Tel: +31 73-6992965
    Fax: +31 73-6992948
    Email: [email protected]
    Internet: http://www.esid.org
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