[peanut2008]

Hey girl - I completely understand your feelings!! Right now i'm in paranoia mode that i'll need another surgery etc... after all we have been through its so hard to relax and purely think positively - I try - but as a means of protecting myself I feel like I can't get too excited...So here's the whole story - so u get an idea...
6:45am I arrived at the hospital and went through the check-in process...They take blood , have u put on the attractive hospital clothes and booties etc. Then they had me in a room w-husband answering questions/filling out papers, around 8am they came to get me..thats when hubby wasn't allowed to come. They took me and another woman - walked up the elevator & down several FREEZING long hospital hallways - I felt like I was going to the morgue - the area was so far back and so cold...then they sit us in seats outside 2 "office" rooms. A receptionist called us one at a time and asked us questions - then waiting - me and the woman began to chat - we were both nervous - she was there for a brest operation...we were in about being female :-) anyways then a nurse came & called me in the office; she said she was the nurse blah, blah blah..then the anestesiologist...etc. Then my doctor came...He told me that he was only going to do laparoscopy if it was completely necessary (i.e. if the scar tissue had hardened and was difficult to remove) anyway - few minuets later they came for me and walked me to surgery room...(doctor gave a warm "welcome" like I was walking in his living room - ) They had me ly on the table - I got a little worried when dr asked nurse if she had ever dont one before because she didn't know how to re-arrange the table for my operation so the doctor did it himself..I didn't get the feeling she had ...ahhhh...but I was also relieved that I had the kids of doctor that didn't need to rely on the nurse and was willing to do things u usually don't see doctors doing himself :-) Anyways - little conversation - needles in the back of my hand and I was OUT! (they didn't even have me count or anything...) I don't know what time that was but I guess around 8:30ish...I woke up in a bed in the recovery room at 10:15 (I was facing the clock when I woke up so I saw the exact time) The doctor was speaking to me but I was so groggy I didin't really understand anything he said to me...I remember thinking to myself - oh at least i'll get home by noon...Finally when I got up up she asked how i felt - I told her I was a little crampy so she said ok - I heard something about a drug - no Idea what it was but I felt GREAT at that point...She said to go home I had to pee first....I felt like I had to go...but I went, tried & couldn't...The nurse took my temperature which was apparently VERY low - (I was shivering) she bundled me up w- 8 blankets and a heater and got me some hot decaf coffee...After that I sat there for about an hour talking and laughing with the nicest nurse (Denise) I have ever met! As I said - I felt No pain :-) after the hour I tried to pee again...I was just getting restless...I wanted to see my husband...but I still couldn't...this was now 2-decafs later...she told me I could be moved to the recovery downstairs where my husband could meet me...While getting in the wheelchair the doctor came in with another patient he had finished operating on...I had a chance to speak to him awake - he said the surgery went well...that he didn't need the laparoscpy but I really had needed the surgery cause my uterus was completely blocked w-scarring...ok - a bit relieved...I went downstairs they brought my husband to the room and here the peeing became a major issue...5 coffee cups 3 glasses of water and a cup of apple juice and I still couldn't pee...I got really pissed when I saw the woman who had surgery AFTER me come down get up pee and leave w-her husband...3 tries later I finally got a few drops out ( remember I was scared & unable to push because of the balloon) they told me I was cleared to go...so in the snowstorm we caught a cab home at two in the afternoon...Hubby went to get me the meds...I was miserable with the pee situation (NOT knowing it was a UTI - I thought it was surgery related) but other that that the drugs were still working so I was a little 'silly' - I watched a few movies w-hubby and went to bed...During the night I woke up several times w-MAJOR urine issues! all day thursday I stayed on the toilet cause I was dying...finally friday morning at 7am I called the doctors...I finally figured out I had a UTI and it was not surgery causing this...They called in a perscription after an hour of begging & fighting with the nurse who wanted me to come in to give a sample...and finally yelled at her "lady I am calling you from the toilet! I will not make it on a train down there...and I just had surgery two days ago and I'm supposed to be in bed!!!" she tells me how dr is gunna want me to come...I yelled to JUST ASK HIM! and she called me back 5 minuets later like "he said ok - do you have a pharmacy number" anyways - the medicine started to kick in around saturday...still feels a little off - but in all seriousness I didn't feel anything more then minor cramps from the surgery - maybe it was so overshadowed by the uti that i didn't feel it...
Saturday night - the tube attached to the balloon started falling out a little - I freaked - lisa heads up this apparently happens alot - dr said to push it back in - I had hubby do it cause I was so freaked....what if I do damage..etc...
Yesterday - went to have the balloon removed - now this was a surprise!! girl - watch out ma...this kinda hurt....I felt so much going on down there I asked to see it when it was finally out...THIS THING WAS HUGE!!! not the balloon - that was deflated...the tube connected...I swear I can't believe all that was inside me...anyways - last night I had terrible cramps - funny - after the giant thing is out I got cramps...I had slowed down on bleeding (which i've been doing since the operation..feels like way too much cause its been since may w-no period..but in reality its just like a normal flow w-extra mucus (sorry to be graphic) anyways I started getting paranoid - like they took the balloon out too soon and its closing up and sealing together again...I didn't relax till I saw some more blood today...I'm so scared...I NEED this to have worked.... I can't go through any more....So now i'm crampy and anxious - it'll be two weeks till the followup scan and I am so scared...In reality Iit won't be till my march period that this will be really over...if all goes well...so the waiting is still continued...yet more hopeful....In the meantime - TWO girls I know just announced they are pregnant - and even have the same due date etc...I am happy for them - it just hurts so much!

I've joined a new group - Ashermans 'http://groups.yahoo.com/group/Ashermans/' really good and lots of info on Ashermans that made me think seriously about any treatment offered to me, I'm more informed on what to expect and what to ask? 10 days to go...

How are you getting on?

[stacyr]

Thanks for asking... I'm in that group too but it is so confusing... there's too many emails and I find no one really answers my questions... are you having better luck? What is your current status right now with everything? Sorry I didn't reply to the last email... I've been so crazy - Glad that helped... I know what you mean about not knowing.. etc. I can't believe snow closes everything around there! We have to work in feet of snow :-) and the trains have closed once in 94' and once in 78' - they never cancel anything in ny - :-) I am desperately waiting for my follow-up on Tuesday... that's when they're going to do another 3-d scan of my uterus to see if they have 'fixed it' or if they need more surgery... I am soooo nervous for that appointment...

[peanut2008]

Thanks for asking...I'm in that group too but it is so confusing...there's too many emails and I find noone really answers my questions...are you having better luck? What is your current status right now with everything? Sorry I didn't reply to the last email...I've been so crazy - Glad that helped...I know what you mean about not knowing..etc. I can't believe snow closes everything around there! We have to work in feet of snow :-) and the trains have closed once in 94' and once in 78' - they never cancel anything in ny - :-) I am desperately waiting for my follow-up on Tuesday...that's when they're gunna do another 3-d scan of my uterus to see if they have 'fixed it' or if they need more surgery...I am soooo nervous for that appointment....

Hi you, Hope you're doing well. I've found the Ashermans site and group forum very useful. I've also joined the UK sub group and have being speaking to some very well informed individuals. I will be having my hysto next Wednesday, but have loads of questions now before they go in? And all the what ifs. I'm really scared of what they'll find and keep praying that it's something very simple (RPOC). My partner is a little concerned as he thinks I'm scaring myself by doing all this research, he still thinks the doctors know best, but from experience I know, that I know my own body. My aunt got pregnant the same time as me and she's due to have her aby in March, I am happy for her, but can't help thinking I should have been experiencing this too! And I may never experience it again! I know that's negative but I try to balance being positive with still maintaining some reality that these things do happen to people, everyone alway's asks why me? Anyway let me know how you get on next Tuesday and I'll let you know how I get on.

Take care
X

[stacyr]

Hey girl - I know EXACTLY how you feel... I just got off the phone with a friend who I have not been able to face throughout my drama - his girl got pregnant 2 weeks after me and she's due in 3 weeks - this is actually the week I was due... on my birthday - so this is hitting me really hard... I haven't been able to face her and then I feel so guilty because of it... I just finished ordering her a gift on her registry cause I couldn't bear to go to her baby shower... It just hurts too much... So girl - I know what you feel... I also feel like this is the week I was supposed to give birth, and I'm hurt depressed and angry that I haven't even had a natural period or the ability to try again... As far as the research and the what if's - I am the same way - my husband has forever been trying to get me off the computer telling me I'm freaking - he gets me so frustrated that he REFUSES to talk about what if something is really wrong - like if he denies it everything will be fine... I sat him down one day and explained to him that for ME I need to know what can happen because in order to protect myself I need to prepare for the worst possible situation... just to be able to deal... that was my problem... I never thougt of misscarriage so I was devistated... I feel like if I know & prepare for the worst then if something better happens I'm just exstatic... and happy... So girl you do what you need to do for yourself... I'm glad your having luck on the Ashermans website... I wish I could share the joy - it just confuses me too much and I don't feel like I've gotten responses... Update - I had a follow-up but wasn't what I expected... I thought I was going to go then have my af around tomorrow... Its not like that - he told me estrogen was for healing not building the lining so lining is really thin now... so not to expect a normal cycle... said I should have a normal cycle in 4-6 weeks! I can't take any more waiting! Just be prepared girl... things no one has told me! So anyway after I get (if I get) my period at the end of March I need to go for another saline test - and then and only then would I be cleared to Trying to conceive - I am sooooo nervous - and like you hopeful but thinking the worst... I just want this nightmare over - my friends girl is going to give birth and I'm still not going to know if I'm okay - dr said it was healing well... but we just need to wait... BEST OF LUCK GIRL - Keep me posted!

[peanut2008]

Hi Staceyr,

Hope your doing good!

The long story, but not as intrusive as I thought it would be...

I was third on the list today for my hysteroscopy, but their was an admin cock up with my bloods this morning meant I was seen second to last of the 9 patients who was on the ward this morning, went in minutes to midday.
Anyway, the Senior Registrar came over and he knew his stuff, he was the first doctor to talk to me about ashermans as a possibility without me even mentioning it. Although my very controversial ultrasound results referred to polysystic ovaries, RPOC, old blood and most likely fibroids, he came with an open mind. He gave me his opinion, but ultimately I talked about what I wanted to happen in relation to my treatment depending on the diagnosis and he took this on board. We also talked about the instruments he would use for the various diagnoses and I expressed my concern about the use of heat source instrument, which he also took on board and told me about the pros and cons.
I was prepared with a wealth of knowledge thanks to the ashermans site and the group of such strong women who have taken the time to enlighten me and share there own experiences (I was with him for about 15 min). I tried to build a rapport with him so that he would remember me as a person and not just another patient on the table (I got the impression he was very passionate about his work). He wanted me to speak to the consultant who indeed was very pleasant and straight forward talking, we agreed he would go in and investigate, if it was calcified or dense scaring, he would leave it for me to decide after the procedure the best way forward, if it was retained products, he promised he would be gentle and take extra care as he would not want to cause me anymore distress, and said the camera would guide him so there would be no issue of him scrapping too much, finally he said if it's a fibroid he would remove it, if I'm happy for him to do so. He said other than that - any serious scaring that would involve cutting of any sort or a more complicated procedure he would leave for me to decide the next step... I felt consulted and involved. The consultant promised he would do the procedure and would not allow anyone else to do it, as he wanted to give me total faith.
The procedure took 30 minutes, the consultant and the Snr Registrar came round immediately to speak to me whilst I was still waking up from the GA. They were both smiling, said straight forward... no scissors or laser etc was used. He said there was a blockage at the beginning of the uterus; very thin filmy scaring that he flushed away using the force of water, like a power hose (cant remember what he called it). Too much info COMING... he then said you covered our theatre in blood, thanks Natasha and laughed, (this was collective period blood for the last 6 months!) He said all the old blood came out, he had a full and through look inside and everything was OK, uterus, ovaries, not a single scar or fibroid to be seen. He also took a biopsy of the endo (I'm told this is standard procedure). He showed me a picture of the procedure step-by-step, quite useful to visualise and I can see the big opening.
He said he very much doubts the scaring will reform, but will see me in 6 weeks for a check-up to ensure all is good. Just as I was about to leave the consultant came over again to ensure all my questions were answered, which he did.
(At the end of the day I made an informed decision that felt right for me).

Glad to be home, just hope I heal well and have a period…I’ll keep you updated.:)

Keep in touch

Nat

[stacyr]

Hey Nat - so sorry it took me so long to write back... I hadn't checked the site... Then I finally read it but I've been so crazy - Sounds like you had a pretty good experience... you're pretty much on the same timeline as me... The waiting is absolutely killing me right now! I was told to see if I get my af or not in late march... then either way I got to go back... I don't know why he can't just check the lining now that I should be ovulating in a few days... How do you feel since? How long did you bleed for?. hope all is well girl!

[stacyr]

You're really lucky ma!!

[TinkerT]

Hello, I was 11.4 weeks pregnant, and was getting a sonagram done the day before christmas eve of 08, and the sonagram showed my baby had lost heartbeat at 8.5 weeks, and I was carrying it not knowing, I didn't bleed the issue or anything so I didn't know. I then got the D & C the next day, Christmas Eve. I didn't bleed until Jan 31st, and Feb 1st. Those two days only. And now it is March 3rd, and still nothing. I have done home test, negative. So I will be doing another in the morning. I have many symptoms I guess, just don't know how I would be though, My fiancé n I been using condoms and pulling out along with it, but you never know right. Anyone relate to this? And peanut, did you ever get your period, or find out what was up with you not having yours?

[stacyr]

Tinker - Sorry to hear about your loss - my situation was very similar - I had found out about my loss at 11 1/2 weeks and they said it had died around 9 or 10 weeks... You are still very early to be worried yet... it is good that you had your period for two days... its a sign that things are straightening out... give it some more time and see what happens this month... periods are often out of wack after a d & c... if it doesn't come at all they can try medicine (prometrium or provera) to bring it down... it wasn't until after four months that they really investigated with me... I had felt symptoms for a long time after and it turned out that my levels were too low to be detected by a hpt but too high to ovulate this was 3 months after the d & c - it can take a while for the levels to drop... Good luck girl... and keep me posted...

[peanut2008]

Hey Nat - so sorry it took me so long to write back...I hadn't checked the site...Then I finally read it but i've been so crazy - Sounds like you had a pretty good experience...you're pretty much on the same timeline as me...The waiting is absolutely killing me right now!! I was told to see if I get my af or not in late march...then either way I gotta go back...I dunno why he can't just check the lining now that I should be ovulating in a few days...How do you feel since? how long did you bleed for??....hope all is well girl!

Hi Staceyr, I went into hospital with the horrible cramps that accompanied that time of the month and no periods, but when I came round the pain had gone, no pain killers were needed. Maybe a coinsidence? Maybe it was a good sign. The consultant said a hell of a lot of blood came out of me, I spot bled for three days post op, then it lightened to nothing, back to normal now. What I did notice was that I was really thirsty days after the hysto.. can work out why?

I've since had my actual follow-up appointment letter in the post, It's 10 weeks!! Not 6. I go back on 6th May.

I've also written a letter of complaint to the previous hospital that messed me up in the first place. I'll keep you updated.

Any how, enough about me. How are you feeling? Any improvements? Let me know. Hope AF comes by the next time we speak.:)

[peanut2008]

Tinker - Sorry to hear about your loss - my situation was very similar - I had found out about my loss at 11 1/2 weeks and they said it had died around 9 or 10 weeks...You are still very early to be worried yet...it is good that you had your period for two days...its a sign that things are straightening out...give it some more time and see what happens this month...periods are often out of wack after a d & c...if it doesn't come at all they can try medicine (prometrium or provera) to bring it down...it wasn't untill after four months that they really investigated with me...I had felt symptoms for a long time after and it turned out that my levels were too low to be detected by a hpt but too high to ovulate this was 3 months after the d & c - it can take a while for the levels to drop... Good luck girl...and keep me posted....

Hi Tinker,

Sorry for your loss. Staceyr is right your 'slight' period is a good indication that something's working in there. Remember your body has gone through a lot of trauma (pregnancy/D&C), however if you feel something is wrong there is no problem in seeking medical advice. Your doctor can give your hormone tablets to kick start your AF or he/she can refer you for diagnostic test's, though I'm guessing he/she will tell you to wait and see what happens for a month or two. Do not be afraid to demand an investigation into your lack of period, remember it's your body and sometimes doctors are like robots and can procrastinate when the unknown or too complexed comes along. I'm sure you're fine, but speak to your doc for reassurance. I was getting intense cyclic pain every month (same time I would get my AF) but I had no AF. The investigations were inconclusive, so I had a Hysterocopy (small camera insertd into my uterus), the consultant found very thin scaring at the beginning, which he managed to break down using a flush (a bit like a power hose). This scaring was blocking my AF from coming out. Which explained the intense AF pains, basically the muscles were working hard to expel the blood but the blood was just flowing back up, hence the pain. I now have to play the waiting game to see if the procedure was successful in helping me to get my AF back!

Let me know how you get on? Regardless of whether you see your doc.:confused:
X

[TinkerT]

Hey Stacy, thank you very much for giving me your story, it all helps. I know I was totally hurt about it all, cause we've been wanting a child for so long, I am still young yes25 in 3 weeks, but still I am different from others my age. But my time will come. I also have Crohns disease too which is a struggle also to deal with. I am will keep you posted once I know, cause at this point its all just a waiting process, so I will come back n fill u in. thanks. I am going to check in here every now n then for some advice n also give some too... thanks. Take it easy

[TinkerT]

And thank you peanut. Yea I think everything hopefully should be fine. Just kept having me take home test, negative, which I knew. And so dr, said he was going to wait two more weeks to see. It's all up in the air really I guess. Thank again, stacy and peanut thank you get talking with me. Miscarriages are difficult to go threw for sure emontionly. My mom had two misacarriages right in a row. And the lady after I got the d&c she took me by wheel chair and said she had 7 miscarriages then three boys after that. So pretty muchs. I am just going on, sorry. Take it easy... much love

[stacyr]

No prob tinker - we can all relate to frustration and loss...
Nat - major questions in the meantime... I should be ovulating this week - all week I had faint negative lines on opk - I'm trying to watch to see if my system stays regular... (last month post surgery I ovulated feb 8th but then no blood - dr said it was normal but now my body is buggin)... Anyways as I said I should be ovulating... but instead I had red light spotting Friday and then nothing... I can't figure this out at all... why am I spotting? Have you heard anything about the surgery setting off your ovulation cycle? I don't know - My dr is out of town - He emailed me back and said I could come in on Wednesday (that was before the spotting) no I really need to see him... Just wondered if you had anything like this or if dr warned about this... Thanks girl!

[TinkerT]

Well I did finally get my cycle just to let you girls know, so now I can get through that worry, n then plan for the future. And thanks again to you girls. It means a lot, talk soon.

[peanut2008]

Hi Stacey, I was just reading my emails from the ashermans site and saw this post which looked like yours. I then come on here and see the similarities. It is you, isn't it? (you don't have to answer that). Anyway, not sure about the spotting?? My doctor didn't really tell me what to expect, just said my AF should come back anytime between 3 to 8 weeks and to follow up with him in the longest 10 weeks EVER! The ashermans site is the best place if you want to get an answer, someone is bound to have had a similar or the same experience. When's your doc back? I would try not to worry too much (I know harder said than done) your had an invasive procedure and your body is probably still healing, but check with your doc just for piece of mind. My brests are so sore and heavy at the moment so if I don't see AF in a couple of weeks, I'll be here pulling out my hair too! You better keep checking just in case I need your support! Hang in there and stay positive.

Tinker: I'm so pleased your AF came and your not in this boat, take care.

Peanut:)
X

[TinkerT]

Yes thank u, cause I was worried I would have had to take much longer you know, like those shots you were talking about or some pill to start it. Wish all of us could have that gift of a child. So I wish you girls luck. And I will keep you posted. Take care

[flipperT]

I'm having very similar symptoms to both Peanut and Stacey and reading through its been very helpful and I'm sorry for what you've been going through. I was diagnosed at 13.5 weeks with a missed mc. We were devastated but decided to wait 2 weeks to see if anything started to happen naturally. It didn't, so I had a D&C at 15 weeks. There were 3 other women having the op the same day, but I was the only one put on IV fluids afterwards. Maybe there was more to loose. 3 days later I was in a lot of pain, and it turned out I had an infection, for which I took antibiotics. Its now been 3 months and no period. I did pg test today, and negative. I had slight spotting about 5 weeks ago, but I didn't need to wear anything, it was only there when I wiped. I've had slight pains, but for someone who normally has very bad pain, they were inconsiquential. I spoke to a dr friend of mine, who said just keep trying to conceive and see what happens, but having read your threads, I can't help but think that perhaps I should seek more advice. Also how is it going now that you have both had the op, and are hopefully recovering well.

[jlshulman]

I just read through both of your posts here... if either of you are still on here, I'm going through almost the same thing now. Missed miscarriage back in Nov of 2009. D & C a week later (I wanted to get in sooner,but my doc wasn't very urgent about it). And, now, still no period for 9 weeks. I did have blood work done--the HCG levels still show me as pregnant (and, nope, there is no chance that it's a new pregnancy... ), and everything else is normal. MY doc wants to do another ultrasound next week... but, everything I've read on-line says that an ultrasound can't detect Asherman's (if that's what I have). SO upsetting. How are things for both of you now? ANy better? Email me if you can at jlshulman at gmail dot com. Thanks!!

[kaiki]

It's incredible. So I'm reading all this and feeling relieved I'm not the only one, but even more terrified now I know it could maybe be bad that I don't have a period yet after my D&C... 2 months so far. This sucks so badly, I just want to be normal and healthy again. Also piling on weight!! I can't understand it - I've never been fat in my life, this is so so scary and I'm hitting depression.