[orgless]

That I have clitordynia which in english translates to painful!! I know that much!!

[J_9]

I notice you say you have visited many doctors, but have you visited a neurologist? This could be due to damage to the pudendal nerve. While it is uncommon, it is not unheard of.

[orgless]

I asked the sex therapist and she just said it was utter rubbish that it could have anything to do with that

[J_9]

A sex therapist and a neurologist are two totally different entities. Check with a neurologist, they deal with nerve impulses, where a sex therapist deals with mental issues.

I notice that numerous people are trying to help you here, but all you do is shoot down their ideas and their help. If you would tell us exactly what you want to hear, we would be happy to help you further.

[orgless]

In the uk its not as easy as just walking intothe office and asking to see a neurologist, and then getting that treatment in a few weeks time, I wish it was life would be so much simpler, it is a battle to just get antibiotics or whatever here. I don't mean to shot people down, its just that I don't understand a great deal of what they are telling me about that's all

[J_9]

i dont understand a great deal of what they are telling me about thats all

What is it you don't understand? Everyone has been very helpful. Many of us do not understand the system in the UK as you don't understand the system in the US.

You have been given a diagnosis of clitordynia correct? Get your doctor to give you a referral to a neurologist.

[orgless]

I cme back from the us with this info and gave it to my doctor here in the uk she wouldn't accept that info and mademe go and see someon here who agreeded that I have pain there, I was then sent to see a dermotologist!! I complained to my doctor about that and got took of her list, I now have no doctor

[Wondergirl]

Why wouldn't she accept the information?

[simoneaugie]

Yes, it's possible that the effects of the rape are still causing problems. Your said that you have seen a psychotherapist, right?

Was your painful area hurting you before the rape occurred?

[orgless]

Yes the rape was 10 years ago and I have had the pain al my life I'm now 43

[templelane]

To be fair on the OP, the UK NHS is rubbish, it does breed this defeatest attitude in you. It is an uphill struggle to be noticed and to actually get the doctors to believe you.

It is a very good system for minor easy complaints like broken bones, minor infections etc but anything more complicated and it is a postcode lottery if you happen to have the right specialist in your area or not.

Sorry I cannot help on the actual problem, just wanted to offer some 'the NHS is rubbish' support!

[orgless]

To be fair on the OP, the UK NHS is rubbish, it does breed this defeatest attitude in you. It is an uphill struggle to be noticed and to actually get the doctors to beleive you.

It is a very good system for minor easy complaints like broken bones, minor infections ect but anything more complicated and it is a postcode lottery if you happen to have the right specialist in your area or not.

Sorry I cannot help on the actual problem, just wanted to offer some 'the NHS is rubbish' support!

Thank god someone else agrees with me about this, I know its hard for you in the usa to realise but the nhs is not that much better than some third world system, and that's for the day to day complaints, never mind something of this sort.

If you rock the boat and have something that requires more investigation than a listen to your heart and take your blood pressure they are stumped as to what to do, for example when I first approached the doctor aboutthis pain a few years back she talked and listened to me, and then promptly sent me to see a sex therapist, that woman is not able to presribe or even look at me to see what might be causing the problem, she can only talk, so its like going to the doctor with a broken leg and expecting it to get better by talking!!

I have tried everything that is humanly possible, the talk route the vib route the learn to explore yourself route the drug route, and not one thing has worked, or even improved anything to give me hope, every effort I have done to make this one day happen for me has been net with failure, I even tried hypnotherpy as well, my only option for this and to save me from further heartache is to have it removed as you would do if you have some part of your body that just don't work or respond to any treatment you have tried.

Its not a dissicion that I have taken lightly, I have seriously thought about this for a long time now, and spent the day in tears yesterday after telling my husband of my intentions, to be met with hostitaty from him regarding this even though he sees every day the pain that I live with.

Whatelse is a person meant to do , how much does someone have to suffer?

[Wondergirl]

I've always heard that the NHS is superior to the US health care system, and that we should adopt similar policies. You've given me reason to think the opposite.

What you are experiencing is rare. I wonder if a medical center like the Mayo Clinic or Johns Hopkins would consider bringing you to this country for treatment. I'm not sure how to help you accomplish such a thing, or even if you'd be willing. I'm thinking Oprah or pleading letters to medical centers or finding a US advocate who can smooth the way. It has been done before; our newspapers occasionally print a story about such a thing, and I'm sure it happens more often than we are told. Hmmmm...

Here's an article about pain in the genital area:

Taking The Shame Out Of Pudendal Neuralgia

Btw, here are two maybe helpful threads (forums) I found about this problem:

Clitordynia - ICN - Interstitial cystitis information & support

Pudendal.Info :: View topic - PN in my clitoris???

And another with a dr's contact info included in one post:

Sexual Health Groups & Boards: Dr. Goldstein clitorodynia and vulvodynia

Would a UK doctor be willing to read some or all of the above information?

[simoneaugie]

I've lived most of my life in the USA. I have been to the UK three times. Twice while I was there, I needed medical care. The first time I had blood poisoning, the second time I needed stitches. I was treated like week-old, rotted chicken bones both times. I have rarely been treated even slightly rudely here at home.

The NHS is not rubbish, it is far worse. It's not respectful enough for my dog! Certainly, it is not a supportive place to visit, especially for unusual trouble with female organs. You must go somewhere where the doctor will want to help. Wondergirl had some insightful ideas listed above.

[smoothy]

I agree, see a doctor, even if you have to go elsewhere to do it... you don't want to cut your nose off to spite your face. This is something that just can not be reversed and carries a lifetime of consequences for you.