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Alty · Jul 9, 2012, 12:13 PM

Originally Posted by ashleym1983

That would be wounderful. I habe a disorder called Eilers-danlos syndrom i have stages 1,2&3 if there is anyone out there with this i would love to talk with them i have lots of info on it and many years of experance having it. Do you know were i would go to to put a post for anyone with EDS or woundering about this syndrom? I would love to be able to help someone or just be there for someone to talk to. Let me know if u know how i do this. That would rock

Usually we wait for someone to ask a question, but we do have discussion forums. The sort of post you're thinking of writing would be best for the discussion area.

Just go to the "ask" link. When you've typed your post select "Forum Community" for you forum, "other member discussions" for your sub forum, and then lastly "Member discussions". :)

ashleym1983 · Jul 10, 2012, 04:03 PM

Originally Posted by Alty

Usually we wait for someone to ask a question, but we do have discussion forums. The sort of post you're thinking of writing would be best for the discussion area.

Just go to the "ask" link. When you've typed your post select "Forum Community" for you forum, "other member discussions" for your sub forum, and then lastly "Member discussions". :)

Thanks I will do that. It would be great to meet someone who shares my disorder but it is very rare.