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Beckwith-Wiedeman syndrome
I jave a friend whose child has this. Are there any parents out there with children with this and can inform me more on it and how I can help. Or how old your child is,and how they have progressed. All I read is what ifs, and could happen, but what it really going to be like and what will make it easier? Shoes, clothing, where do you get those? Anyone who has an older child with BWS?
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