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tlc2259 · Mar 27, 2014, 07:45 AM

My 19 year old son has been diagnosed with hypotension, hypoglycemia, an elevated hemoglobin count, and presyncope. He is an athlete and is very aware of his diet and fluid intake. He has been experiencing tingling in his arms and legs, bouts of diarrhea and constipation on varying days,blurry vision, body weakness, the feeling of being hit by a truck, locking up of his arms while his they shake,pain in his legs, and lightheadedness in which he "sees stars". He has been to numerous doctors including a cardiologist and endocrinologist. His stress test, EKG, and sonogram are normal. His blood work and 24 hour urine collection are normal. No one can find a reason for all of these issues. He has days in which he can barely get out of bed and days where he feel great. There seems to be no rhyme or reason for when he feels good or bad. Can you help?

smoothy · Mar 27, 2014, 07:59 AM

How can his blood work come back normal if he has an elevated hemoglobin count? Thats a contradiction because thats how they would detect it.

Each of these are treatable... and since you have been to "numerous doctors"... what courses of treatment have they put him on?

tlc2259 · Mar 27, 2014, 08:07 AM

I should have worded the blood work comment as such - other than a high helmoglobin count, his blood work is normal. Thank you for catching that. The "treatment" that has been suggested is to increase his salt intake, drink 16 oz of water before getting out of bed, and make sure that he eats every few hours. Unfortunately, this has not helped. Nothing else has been suggested. He will be seeing another endocrinologist next week.

J_9 · Mar 27, 2014, 08:08 AM

Has he worn a Holter Monitor?

tlc2259 · Mar 27, 2014, 08:11 AM

Originally Posted by J_9

Has he worn a Holter Monitor?

No, he has not worn a Holter Monitor. I will ask his doctor about that. Thank you.

joypulv · Mar 27, 2014, 08:54 AM

I am not in any way suggesting that he is in danger of something fatal, but given all the tests he has had, I might look into some rare conditions that are known to affect athletes and that don't show on routine tests. This link may interest him: http://www.hughston.com/hha/a_16_4_4.htm

J_9 · Mar 27, 2014, 08:58 AM

Originally Posted by joypulv

I am not in any way suggesting that he is in danger of something fatal, but given all the tests he has had, I might look into some rare conditions that are known to affect athletes and that don't show on routine tests. This link may interest him: Sudden Death in Athletes

I agree. This is why I suggested a Holter Monitor.

joypulv · Mar 27, 2014, 09:00 AM

Yes, sorry, J_9, I should have mentioned that.

J_9 · Mar 27, 2014, 09:09 AM

Agree with your post. Just out of greenies. ;)

tlc2259 · Mar 27, 2014, 09:58 AM

Originally Posted by joypulv

I am not in any way suggesting that he is in danger of something fatal, but given all the tests he has had, I might look into some rare conditions that are known to affect athletes and that don't show on routine tests. This link may interest him: Sudden Death in Athletes

Thank you! We have not looked into sudden death in athletes. I have left a message for his primary physician. I appreciate everyone's help.