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    jilltracie's Avatar
    jilltracie Posts: 1, Reputation: 1
    New Member
    		  
    #1

    Oct 17, 2009, 12:28 PM
    My sister passed away.
    My sister passed away from Moya Moya disease. We would like to send her memorial to the foundation. How and where do we send them.
    KISS's Avatar
    KISS Posts: 12,510, Reputation: 839
    Uber Member
    		  
    #2

    Oct 17, 2009, 01:24 PM


    My condolences for your loss.

    The closest I found was this: Disease Information from NORD, National Organization for Rare Disorders, Inc.

    From this link: Links to Moyamoya Information and Sites
    JudyKayTee's Avatar
    JudyKayTee Posts: 46,503, Reputation: 4600
    Uber Member
    		  
    #3

    Oct 19, 2009, 06:43 AM

    I am sorry for your loss - I find nothing other than what "KISS" has posted.
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