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Brianna123 · Feb 26, 2008, 01:01 PM

I am diagnosed with fibromyalgia, IBS, anxiety and depression. However, one of the worse things I feel is chronic fatigue. I am trying to get on SSD and I have personal disability insurance that keeps denying me of a physical disability but instead says it's a mental disorder. I am constantly talking to my pain specialist about my Chronic Fatigue. They give me no answers on this problem nor descibe this symptom on my disability claims. This upsets me so much because that is one of the biggest problems I have with my health. Why do they not mention this symptom? 4 days out of 7 I get it and I never no when it will come. I can not work due to this pattern and constantly feeling sick. Yet, they the doctors. are not mentioning this. Help!

Sheri K · Jan 28, 2009, 08:43 PM

I was in the same place you are 9 months ago. I started taking a product that has given me my quality of life back. By the 2nd week I noticed I hadn't had a nap in 3 days which was short of a miracle. 9 months later... I have been up and active for 16 hours today and haven't thought about laying down once. Doctors are prisoners of their own training. If they can't write a RX they can't help. Are there any holistic Doctors in your area?

Sheri K · Jan 29, 2009, 07:03 PM

Choux, No caffeine.

trmpldonagn · Jan 31, 2009, 09:56 AM

Hi Brianna. Is this EBV? (Eppstein-Barre Virus)? There is a test for it. Either way, CFS is REAL. Have your doctor check with the center for Disease Control in Atlanta I believe. It is real. Can you ask you're doctor why he is not listing this. And can you answer any of these questions or write it yourself. In other words, give your own input in writing as to how you are feeling. Some doctors really do not know about or are not up to date with CFS. Granted it could be so many other things; food allergies or food sensitivities that you do not know about, etc. Although, caffeine could very well be a culprit, most people with CFS are told to avoid caffeine anyway along with any other stimulants. Naturally, it can keep you up and this is not good since insomnia goes right along with CFS believe it or not. Also, when you "crash" or come down from that caffeine high, you will feel worse. Be careful if you Google this info because I have not seen anywhere yet where there is a complete and accurate description of the disease. Md health is not a bad site to look up CFS or EBV. It is very debilitating and it's not all in your head. I promise you that. You can go in and out of remission with the disease. And don't let the word "disease" scare you. You can't die from it but unfortunately, it never leaves you. Like all people that have a 'cold' virus, all it takes is for that virus to activate. When someone has HIV and the virus activates or reactivates, it turns into AIDS. When someone has EBV, it turns into MONOnucleosis. There is CEBV which of course is Chronic Eppstein Barre Virus where there is usually no remission periods. Do enough research, find the right doctor, and you will find ways to cope and feel better. Believe me you will feel good again but you are correct when you say it just sneaks up on you and you can't always predict it. Hang in there and I hope you feel better. If this wasn't so darn long already, I'd tell you what foods to eat and avoid as well as fluids and vitamins but I'll bet you're already familiar with that. Best to you and please do feel better!

JudyKayTee · Jan 31, 2009, 05:56 PM

Have you been tested for System Lupus Erythematosus ("Lupus")? There are both medical criteria AND lab tests.

trmpldonagn · Jan 31, 2009, 06:00 PM

Yes, tests tests tests. Your Doctor should have run (more) tests if this is the same doctor? Some results can mimick another disease too and sometimes people are easily misdiagnosed. But the above is a very good suggestion. Just so your mind will be at ease. Please let us know how you are doing and how you make out. Hang in there.