Help, our Doctors don't know what is wrong!!
My husband became very ill in January of this year. A GI doctor and an Internist are lost and cannot figure out what is going on.
He was hospitalized for one week with severe bloody diarrhea, vomiting, dizzyness. He also felt full without eating and gets very bad pains in his abdomen. His stomach gets extended and he has bouts of horrible "rotten egg" smelling burps and gas. He becomes nasseated and has spells of dry heaves that come out of nowhere. His abdomen is painfull to the touch during these spells, and he can't eat because it makes him feel worse.
Not sure if this could be related but he sweats a lot (mainly at night or when not feeling well) and it smells of amonia.
While in the hospital they did X-rays, CT's, MRI's, blood work of every kind (including cultures) and an colonoscopy. They found very little, though he was still very ill. By the end of the week his diarrhea had cleared up and his symptoms had calmed down, so they released him from the hospital.
His symptoms continued to flare up over and over ever couple of days. They did another CT, and upper GI and an endoscopy and found that he has two ulcers in the duadium and some inflammation in the stomach (this was found a week after being released from the hospital). "I thought I was going to have to take him back to the ER on Saturday, because he was so bad." But it calmed down by Sunday afternoon.
They were monitoring his heart enzymes because they were high, but they think that is because he is a big bodybuilder and his body was under severe stress due to the illness. His liver enymes have been up, but everything else is rpetty normal. He has a nodule on his kidney that they are now monitoring and a fatty liver. Every thing else is pretty normal according to the doctors!
He never feels 100%, but it is tolerable at times and then flares up again. The doctors still do not know what the problem is. He will be doing another CT this week and an MRCP. He is getting tired of tests and we are running out of ideas. If you have any information that can help, please let me know. Thank you
Running out of hope! Any ideas??
In January 2010 my husband became very ill with what we thought was a stomach virus. He had vomiting, diarrhea, cramping in his abdomen, felt full when he tried to eat, dizzy, foul smelling (sulfer) gas, flushing and swetting. He recovered 3 days later.
Then a week later it hit again, only this time it was much worse and he could barely move, and had bloody diarrhea. I took him to the ER where he was admitted to the hospital for one week.
During his stay in the hospital they ran CT, US, MRI of head, Blood cultures, stool cultures, and a colonoscopy. Ever thing checked out clear, outside of some minor inflammation in his pancreas.
One week later the symptoms persisted and they did an endoscopy in his stomach. There they found two small ulcers, and light inflammation. He was treated for hpylori and sent home.
Since then he has had reaccuring symptoms of nassea, frequent bowel movements, flushing, dizzy spells, pressure and distension in the abdomen, pain and discomfort in the lower abdomen, and now trouble breathing at times do to pressure and serious fatigue. He gets sick any time he exerts himself too much and begins dry heaving and dizzyness.
They did another endoscopy and took biopsies of the stomach and uper part of small intestines (1 foot in to the small intest). All were clear! They also did a smallbowel barrium follow through and it showed minor slowing, but nothing else. Since then he has had good days and bad days. But the tenderness and pain always remains in the lower abdomen. He can't eat much and has no appetite and no desire of any foods. His blood work has shown some abnormal findings, but we are still looking.
Some ideas would be great.
He is now working with a GI dcotor and a hemotologist/oncologist due to some abnormal findings in his blood. His test results are as follows.
Blood Work
BUN - Slightly High at 22
Creatinine - Slightly High at 1.6
EGFR - 59
ALK Phos - Low
Anion Gap - Low
AST - High 111
ALT - High 288
Protime - High 11.4
Chromogranin A - High 70 - Carcinoid Testing
Seratonin - Normal High 211
URINE
5 HIAA - Normal
Creat - High 3334
Now he has a mass protruding on the right side of his belly button. Will ask the doctor about that today!
Any ideas would be great! Thank you