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-   -   Helplessly in pain (https://www.askmehelpdesk.com/showthread.php?t=293940)

  • Dec 19, 2008, 01:43 PM
    truthxbextold
    Helplessly in pain
    My son is 21 and diagnosed with schizophenia,he is sensitive to medication.he has been on many meds,but nothing seems to help him they only cause side effects.his one complaint is the pains in his thighs and it doesn't even help if he lays down.he only wants to get out of pain and rest but he can't ,no meds work.im sure that the anti phychotic drugs are doing this because he has akethesia also.he is told that there is nothing wrong and the pain is all in his head,I'm very frustrated and don't hold out any hope.please help me figure this out.
  • Dec 19, 2008, 01:46 PM
    N0help4u

    Is he taking any meds now?
    I know alternative meds for schizo that may or may not help.
    Some of the B vitamins are very important.


    I will look up some things that might help.
    I never heard of akethesia.
  • Dec 19, 2008, 02:38 PM
    KBC
    Quote:

    Originally Posted by N0help4u View Post
    I never heard of akethesia.

    I haven't heard of that either so I can't add anything to the idea.

    I caution any sudden changes in medications,the diagnosis (if correct) is to give him specific meds,as the guardian you already know the necessity of maintaining the dosage.

    Has he been x-rayed or undergone an mri to discover any physical reason for the pain?
  • Dec 19, 2008, 02:52 PM
    N0help4u

    She said he is having problems with the meds.
    He can not just quit them but if he is off them and not seeing himself taking any in the near future he could try the vitamins.
  • Dec 19, 2008, 03:10 PM
    KBC

    I am very cautious of someone(guardian,care giver) or someone who thinks the grass might be greener,and jumps ship for the other side,not considering the outcome,I only caution.
  • Dec 19, 2008, 03:11 PM
    N0help4u

    Yeah I do to but I believe in exploring all options and making an educated decision.
    Not jumping ship.
  • Dec 19, 2008, 03:57 PM
    Choux

    Do you mean that he has tardive dyskinesia?

    I think if I were you, I would look into the possibility of your son living in supportive residence setting if they exist in your state for men with schizophrenia.

    I would tend to think that the pain in his thighs is generated in his mind. Why, I don't know. Perhaps, if his medication works, he is afraid of feeling better because more will be asked of him. I don't know.

    Is his schizophrenia of the paranoid type?
  • Dec 25, 2008, 12:41 PM
    truthxbextold
    Quote:

    Originally Posted by N0help4u View Post
    Is he taking any meds now?
    I know alternative meds for schizo that may or may not help.
    Some of the B vitamins are very important.


    I will look up some things that might help.
    I never heard of akethesia.

    Yes my son is taking his meds,they have lowered his dose of anti-phychotics a little.he has the rocking with is akathesia.thank you for trying to help
  • Dec 25, 2008, 12:44 PM
    Fr_Chuck

    There is not always a "fix" for every human physcial and mental problem. Some can be controlled, others are just helped as much as possible. Often in mental and phycial issues not even doctors are always sure which is the cause and they use educated guesses at best.
  • Dec 26, 2008, 02:57 PM
    truthxbextold
    Quote:

    Originally Posted by Fr_Chuck View Post
    There is not always a "fix" for every human physcial and mental problem. Some can be controled, others are just helped as much as possible. Often in mental and phycial issues not even doctors are always sure which is the cause and they use educated guesses at best.

    Thanks chuck for your input ,its just so hard to settle for a guess when my son calls me begging or crying for me to help him.when you're a parent you never want to give up.
  • Dec 26, 2008, 03:10 PM
    truthxbextold
    Quote:

    Originally Posted by Choux View Post
    Do you mean that he has tardive dyskinesia?

    I think if I were you, I would look into the possibility of your son living in supportive residence setting if they exist in your state for men with schizophrenia.

    I would tend to think that the pain in his thighs is generated in his mind. Why, I don't know. Perhaps, if his medication works, he is afraid of feeling better because more will be asked of him. I don't know.

    Is his schizophrenia of the paranoid type?

    He is in a group home of three and he is not doing well ,he seems good when he has little or no pain.he really has a low threshold for pain.I know this pain is real and on going because he has been complaining since summer and it s getting worse or at its peak because he can't stand it anymore.he only wants to get better so he can make something of his life.what a waste of a human life.we have prayed for his recovery or at least an understanding of his ailments but we never do know what is wrong . And this is 3 years later:(
  • Dec 26, 2008, 03:20 PM
    truthxbextold
    Quote:

    Originally Posted by KBC View Post
    I haven't heard of that either so I can't add anything to the idea.

    I caution any sudden changes in medications,the diagnosis (if correct) is to give him specific meds,as the guardian you already know the necessity of maintaining the dosage.

    Has he been x-rayed or undergone an mri to discover any physical reason for the pain?

    there is no changes in his meds.he is in assited living,and takes his meds regularly.he has had several x-rays ,mri and cat scans to find nothing.im thinking fibromaylia do to aches and pains since he has been comlaining for about 3 years.

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