Hi :)

I was diagnosed with Sweet's Syndrome this year. The symptoms usually go away in a couple of months but I have had symptoms for over 14 months now and am just getting sicker (no insurance, no doctor.)

Does anyone here have this illness or know anyone that does?

To read more about what I am going through you can read my story and se photos at:

www.realitycharity.com/freebird (most recently updated)
Or
- www.myspace.com/freebirdbrokenwing (most pictures and documentation)

Hugs

Quote:

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Originally Posted by FreeBirdBrokenWing

Hi :)

I was diagnosed with Sweet's Syndrome this year. The symptoms usually go away in a couple of months but I have had symptoms for over 14 months now and am just getting sicker (no insurance, no doctor.)

Does anyone here have this illness or know anyone that does?

To read more about what I am going through you can read my story and se photos at:

www.realitycharity.com/freebird (most recently updated)
or
- www.myspace.com/freebirdbrokenwing (most pictures and documentation)

hugs

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I know only this much about your affliction:
: a disease that occurs especially in middle-aged women, that is characterized by red raised often painful patches on the skin, fever, and neutrophilia in the peripheral blood, that responds to treatment with corticosteroids but not antibiotics, and that is of unknown cause but is sometimes associated with an underlying malignant disorder -- called also acute febrile neutrophilic dermatosis

Give me 24 hour and I will probably have more information for you, but is this what you are experiencing ?

Yes, I know all of that, Thank you :) Did you look at any of my blog info on myspace/freebirdbrokenwing or documentation on realitycharity/freebird? I have pics of the boils on there and more indepth info on my rare cancer. I wish I could find someone else that is going through this for a support system. My dermatologist (probono god bless him) has never seen a case as bad as mine. The cancer cells I have are Waldenstrom Macroglobulinemia but my oncologist at Moffitt Cancer Center only treats me via phone because he says I am not malignant YET? If you could read my info on realitycharity or myspace it will tell you everything I know. THANK YOU!! Gob Bless you too!