My daughter was told by her physician that she had elevated B12 levels. When she asked what that meant, he told her the only time he's seen this was when a child had leukemia.
First of all, I was furious he told her that before any sort of testing being done. Second, I have searched the internet and found hundreds of articles about low levels of B12, but not elevated levels of B12. Does anyone know where I can go to get info on this?

Thanks!

Well, I know that vitamin B12 is needed to produce an adequate amount of healthy red blood cells in the bone marrow and a lot of times vegans are at a higher risk of deficiency but I'm honestly not sure what it means to have elevated levels of B12. I googled this several different ways and could not find a thing. If I were you, I would search for a different doc ASAP; the way your doctor handled that situation in front of your daughter was very inconsiderate. Good luck and I'll let you know if I find anything else out.

That website is not working... I will copy and paste this info I found on a website

Results
A vitamin B12 blood test measures the amount of vitamin B12 in the body. Normal values may vary from lab to lab.

Vitamin B12 160–950 picograms per milliliter (pg/mL)
100–700 picomoles per liter (pmol/L)(SI units)


High values
High levels of vitamin B12 can occur in liver disease (such as cirrhosis or hepatitis) and some types of leukemia. However, the vitamin B12 test is not usually used to diagnose these problems.
In rare cases, high levels may be found in people with diabetes or are obese.

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Originally Posted by chamberchic

My daughter was told by her physician that she had elevated B12 levels. When she asked what that meant, he told her the only time he's seen this was when a child had leukemia.
First of all, I was furious he told her that before any sort of testing being done. Second, I have searched the internet and found hundreds of articles about low levels of B12, but not elevated levels of B12. Does anyone know where I can go to get info on this?

Thanks!

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I hope by now you received the answer to your questions. My family also has elevated B12 levels. This is due to a genetic mutation in the gene that produces the enzyme which converts B12 to its active form usable by the body. The reason why there is too much B12 in the blood is because it is not being converted to its active form. At least that is the issue in our case. Usually in this case you might see B12 deficiency symptoms because your body is not receiving the B12 it needs... it is sitting gin your blood. Hope this helps... good luck!

From everything I looked up it could be an inherited b12 metabolism problem.
But I am having a hard time finding anything but medical terminology and bits and pieces

The bits and pieces
Neuropsychiatric illness in a patient with cobalamin G disease, an inherited disorder of vitamin B12 metabolism.

Megaloblastic anemia despite high vitamin B12 levels suggests one of the following possibilities: a disorder of vitamin B12 metabolism (rare),

What type of doctor would I go to find out if any of the above problems exist for my high B-12 in my blood work?

I have a 15 year old, and she too has elevated b12 levels. I am going to an Endocrinologist to see why. I have seen cirrohsis and hepatitis also, but I hope and pray it's not either.