Hi all, old and new. Long time no post.
I thought I'd reach out for a bit of support, and advice. A month ago we found out that our son (20 years old) has MS (Multiple Sclerosis). He's in the early stages, has only had one flare up so at this point it's not even called MS (because it's a singular flare up, not multiple), but 100% of patients with his scans, get MS. So the diagnosis is MS.
Right now we're reading up on this disease, finding out all we can. He's now on Blue Cross because the medication he'll need to go on is $30,000 a year. Blue Cross won't cover it until he has a second flare up or his next MRI shows more scarring. So right now we're playing the waiting game. It's very odd to be hoping he has another flare up, or his scans get worse, so he can get the medication that will help him lead a better life.
So I'm wondering if anyone on this site has any experience with MS, any words of wisdom to share as we embark on this journey? I know very little about it, my son is the first person that I personally know with MS. It doesn't run in either of our families. Ask me about cancer and I can talk your ear off, but MS is a mystery to me, and how to help my son deal with this diagnosis and live a productive happy life, is also beyond me. So if anyone has any insight, I'm all ears and ready to learn.