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Senior Member
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Nov 4, 2009, 05:16 PM
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It started with head shaking
Hi my son started shaking his head nearly 2 years ago at meal times and was very tired and grumpy all the time and waking up screaming,laughing and talking to himself.
I didn't put all of these together until around a year ago
He is waiting to see the child psycologist also and also attending speech therapy.
The head shaking only happened at meal times,He holds his left hand close to his chest most of the time in a fist,His tongue slightly out,And he make a strange noise with it,The noise breaks up into 5/10 seconds at a time
He does try to fight this when there's someone at the house that's not usually here.
When he comes round he asks ''are we going home'' ''whats wrong mammy'' ''what happend''
With him being tired all the time I decided to put a camera in his room he also does this at night shaking his head,Pulling his arm close to his chest and shaking but more than he does at meal times,faster and more viciously,He is not doing if for attention.
This is keeping him awake at night.
He wakes up crying and he's complaining of sore ankles and legs I put this down to growning pains but now I'm not sure.
He used to wake up screaming wouldn't let me hold him or anything,he was so bad one night I cut his baby grow off him because I thought he was really hurt,My doctor said it was night terrors.
I showed our new health nurse a video of my son at meal time shaking his head and she said he must be copying it off somebody else,we keep ourselves to ourselves,that was the first time she had seen him.
I went to my doctor and she referred him for the peadiactric nurse who sent him for an EEG to see if he has epliepsy they done the flashing light test while the had wires stuck to his head and he had no fits or headshaking.
He constantly asks questions I know all kids do but he will ask ''where are we going'' ill tell him where we are going and not 2 minutes later he asks the same again and again with me telling him again and again and again.
Since he was 6 months old I have told him the colours of ever toy he had in his hand,the colour of the grass,trees,the sky etc and sang the alphabet with him over and over again and counted every step up to bed and down to breakfast non of this seems to be going in he's nearly 4 now and still can't count to 5 or tell me the colours I feel like I'm putting all in and getting nowhere fast.
I've tried everything books,PC games,toys,everyday objects to count and ask colours.
Has anyone herd of or seen this with another child?
Someone mentioned it maybe a mild autism could anybody shed any light on this please
And thank you in advance for you advice
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Uber Member
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Nov 4, 2009, 06:24 PM
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It does sound like autism or some kind of neuological disorder. Many people are noticing that around the time their kid turns two that they are having these kind of problems. The head of the South Hills Pittsburgh Pa autism chapter said that her son and the son of the head of the North Hills chapter noticed that their kids behaviors suddenly changed after this one immunization shot around that time.
Also my friend said her son was developing normally and around two he all of a sudden quit talking and learning and was diagnosed with autism. Many parents are saying this is happening to their kids. Mostly sons right around their second birthday.
They say that out of 4 million kids 24,000 are getting autistic.
I know you are in England. Do they require the immunization shots there?
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Ultra Member
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Nov 4, 2009, 07:19 PM
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It sounds like autism or a form of developmental disorder. Autism is a broad spectrum, so people can be mild or severely autistic.
One of the typical behaviors for autism is what they call "stim" i.e. stimulation. People with autism will repeat a movement to either stimulate or calm themselves. You may have seen autistic people flapping their arms up and down, as one example.
You need to get him assessed as soon as possible, because it sounds as if there is an intellectual development disorder as well.
I would be going to a pediatrician, not a child psychologist.
There is an autism society in the UK, they will be able to refer you to a specialist in your area.
The National Autistic Society - Home
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Uber Member
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Nov 4, 2009, 07:58 PM
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I have videos by a few doctors that warn of the autism connection.
They say shots no longer contain mercury or aluminum but they just use another name for it.
YouTube - Part 1: The Vaccine-Autism Connection
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Ultra Member
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Nov 4, 2009, 08:06 PM
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Originally Posted by N0help4u
I have also read some stuff in the regular press about it - so it must be in the public arena if the papers are discussing it!
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Expert
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Nov 4, 2009, 08:12 PM
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Originally Posted by N0help4u
behaviors suddenly changed after this one immunization shot around that time.
You know I love you... but DON'T blame it on the immunizations. We could get into this debate all day. There are other studies that blame autism on MANY other factors that do not include vaccines.
As a matter of fact, the European doctor who originally blamed autism on vaccinations has been proven wrong and is facing charges.
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Expert
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Nov 4, 2009, 08:17 PM
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Originally Posted by N0help4u
Yup, and I believe EVERYTHING I hear on YouTube and/or wiki. NOT!!
The medication that this supposed doctor is talking about is Thimerisol (sp).
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Jobs & Parenting Expert
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Nov 4, 2009, 08:21 PM
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I agree that there is something neurological going on, but I don't believe it's any kind of autism. Since I have an adult son who is autistic, I've spent a number of years reading up on and talking with professionals about autism. Head shaking as this little boy is doing it isn't one of autism's repetitive behaviors.
Tourette's was the first thing I thought of, but I'm not so sure that explains the rest of his behavior. Age two is often the threshold year for beginning developmental and neurological problems, but I am not so sure immunizations are the cause or the catalyst.
He may be allergic to something in the food he eats. He definitely should be seen by a pediatric neurologist.
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Expert
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Nov 4, 2009, 08:23 PM
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Originally Posted by Gemini54
I have also read some stuff in the regular press about it - so it must be in the public arena if the papers are discussing it!
And the papers make money on fear mongering. Look, I'm a nurse, I specialize in this sort of thing. I give newborns their first vaccination. I know what is out there and what is to be feared and what is not to be feared.
I am specialized in pediatrics.
This is fear mongering at it's worst. I guess we should all stop immunizing and get prepared for outbreaks such as smallpox... mumps... measles, etc. all over again.
NH... are you willing to see your grandchild suffer any of these diseases? Spread them to the rest of the families? I really didn't think so.
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Uber Member
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Nov 4, 2009, 08:34 PM
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Love you too J_9
I am not so sure I rule it out. They even explain the link of how some are susceptible while others are not. It also makes me wonder when it is the one shot near their second birthday that is being linked to it rather than any one of the shots. They say the rise in autism in kids is starting to get alarming something like 24,000 to 4 million.
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Expert
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Nov 4, 2009, 08:38 PM
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The second birthday is a common factor... brain growth and development. Many studies also show that children from affluent families have this disorder.
So, why would the shot at 18 months be different from any other shot?
Again, we can debate this to the end... but I will stand firm that this is all fear mongering.
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Jobs & Parenting Expert
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Nov 4, 2009, 08:41 PM
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Be very careful with subjective tests, when it's a professional's or even parent's personal report of what has occurred. A lot of information about a child accumulated from a number of people and many observations over a long period might give a diagnosis or some idea of what is wrong. But be very careful.
The same goes for linking two events, say turning age 2 and getting a shot, that occur before a medical problem results. There are so many variables that will occur at the same time, and each child receives unique combinations of stimuli. Maybe it was the chocolate frosting on the birthday cake that was the catalyst, or perhaps the laundry soap caused an allergic reaction. Again, be very careful.
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Ultra Member
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Nov 4, 2009, 08:45 PM
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Originally Posted by J_9
And the papers make money on fear mongering. Look, I'm a nurse, I specialize in this sort of thing. I give newborns their first vaccination. I know what is out there and what is to be feared and what is not to be feared.
I am specialized in pediatrics.
This is fear mongering at it's worst. I guess we should all stop immunizing and get prepared for outbreaks such as smallpox...mumps...measles, etc. all over again.
NH...are you willing to see your grandchild suffer any of these diseases? Spread them to the rest of the families? I really didn't think so.
I'm sorry but I don't think it's just fear mongering. Immunization of children is a vexed and contentious issue and I think we have yet to hear the end of what the long term effects are.
There have been concerns about the long term effects for many years - at least now it's being discussed out in the open. No one is advocating a return to the days of small pox or mumps or measles - it is absurd to imply that questioning the long term effects of immunization means we believe this.
It may well be that there are other alternatives in terms of the chemical composition of the vaccines themselves - which is where some of the research should be focused.
I appreciate your experience as a nurse, but my husband works in the field of intellectual disability and I can assure you that some very experienced medical practitioners in that field are voicing concerns. In Australia, anyway.
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Uber Member
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Nov 4, 2009, 08:55 PM
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Many many Doctors in America are voicing their concerns too.
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Jobs & Parenting Expert
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Nov 4, 2009, 08:56 PM
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Originally Posted by Gemini54
I'm sorry but I don't think it's just fear mongering. Immunization of children is a vexed and contentious issue and I think we have yet to hear the end of what the long term effects are.
What else happens at that age? Certainly there are tons more variables than just immunizations. Maybe it's the growth hormones that are in the strained meats that Baby gets fed. Maybe it's a pesticide that is in the strained fruit or vegetables. Maybe it is a chemical in the nursing bottle.
Has anyone identified all the other variables babies encounter and has discounted them?
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Ultra Member
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Nov 4, 2009, 08:58 PM
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Cookie Monster,
I think you son needs to be evaluated more thoroughly. After reading your question, I have been reading about partial seizures, although I don't know if that's what your son has. This medical article says that an EEG is unreliable. I would try to have your son see a pediatric neurologist.
The diagnosis of partial seizures may be quite difficult, especially if the treating physician relies on technology to answer clinical questions. Up to 50% of patients with partial seizures have normal EEGs (between seizures) at the time of first evaluation.
His failure to learn is worrisome, too. Does he have a regular pediatrician who can evaluate his development? My sons' doctor did regular evaluations starting when they were a few months old. Has your son had that? If not, it should be done now.
I am posting the link here, although it's pretty technical.
Diagnosis and Management of Intractable Partial Seizures in Children
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Uber Member
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Nov 4, 2009, 08:59 PM
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yes the tons of variables are what make some more susceptible than others but I do believe the shot is in the mix. Dr Pompa, Dr Len and Dr Joe and Dr Winer are just a few of the doctors that have considered all the variables as you are questioning.
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Jobs & Parenting Expert
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Nov 4, 2009, 09:02 PM
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Originally Posted by N0help4u
just a few of the drs that have considered all the variables as you are questioning.
ALL of the variables...
Have they made an Excel chart (for instance) listing all the children and then columns listing all the variables that have impacted on each child and then looked at the thousands of commonalities?
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Ultra Member
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Nov 4, 2009, 09:06 PM
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Does this sound like it?
Simple partial seizure — Simple partial seizures affect enough of the brain to cause symptoms, but not enough to interfere with consciousness. The symptoms vary from one person to another depending upon the region of the brain involved.
Symptoms may include feeling an unusual sensation (an odd smell or taste), seeing or hearing something, a feeling or emotion (sudden fear or a déjà vu experience), rhythmic twitching or stiffening movement in one hand or foot, or difficulty speaking. During a simple partial seizure, the child is aware but cannot control any abnormal movements that occur.
A simple partial seizure is also known an aura. Aura can occur as an isolated event or may occur before a complex partial seizure or generalized seizure.
Seizures in children
Your son is old enough now that you can ask him what he experiences when he has these episodes. Ask him if he smells anything odd or feels odd or how it's different from how he feels normally. Write down whatever he says for the neurologist who I hope will see him soon.
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Ultra Member
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Nov 4, 2009, 09:12 PM
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Hi Cookie,
Here is more from that same website.
You might want to read more there.
Seizures in children
Behavior during the seizure — Parents can pay close attention to the child's behavior during a seizure, and provide helpful information to the clinician, such as:
Do one or both arms or legs move and is it always on the same side?
Are the eyes and mouth open or closed?
Could the child respond to the parent's voice? To being pinched?
Did the child's color change (eg, pale or blue) during the seizure?
How long did the episode last?
Behavior after the seizure — Questions to consider about the child's behavior after a seizure include:
How did the child behave after the seizure? Did he or she recover immediately, or was there confusion or sleepiness? Did the child speak normally? Could the child respond to commands?
Was the child able to move normally after the seizure? Was there any difficulty speaking or moving the arms or legs on one or both sides?
Did the child remember having the seizure or the events that occurred during it?
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