Caroline, I had trouble finding information on your query because the name of the disease is actually diGeorges Syndrome and there is quite a bit on Google regarding symptoms/treatment etc. It actually occurs because these children are missing the 22 chromosone. There is a site, telephone no and address of a society you can call or write to. Also, please visit Google and see what else you can pick up. I wish you luck and let us know please.
NIH/National Institute of Child Health and Human Development
31 Center Dr
Building 31, Room 2A32
MSC2425
Bethesda, MD 20892
Tel: (301)496-5133
Fax: (301)496-7101
Internet: http://www.nih.gov/hichd/
Or
European Society for Immunodeficiencies (ESID)
c/o Dr. Esther de Vries
Jeroen Bosch Hospital
Dept. Paediatrics
P.O. Box 90153
Hertogenbosch, 5200 ME's
Netherlands
Tel: +31 73-6992965
Fax: +31 73-6992948
Email:
[email protected]
Internet: http://www.esid.org