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View Full Version : Questions about De George Syndrome


caroline0290
Nov 28, 2008, 10:41 AM
I have a grandson, age 6, who has De George Syndrome. He has had heart surgery (before age 1). He has started school this year and is having problems with constant infections. Any ideas about how to combat the situation?

tickle
Nov 28, 2008, 01:34 PM
Caroline, I had trouble finding information on your query because the name of the disease is actually diGeorges Syndrome and there is quite a bit on Google regarding symptoms/treatment etc. It actually occurs because these children are missing the 22 chromosone. There is a site, telephone no and address of a society you can call or write to. Also, please visit Google and see what else you can pick up. I wish you luck and let us know please.

NIH/National Institute of Child Health and Human Development
31 Center Dr
Building 31, Room 2A32
MSC2425
Bethesda, MD 20892
Tel: (301)496-5133
Fax: (301)496-7101
Internet: http://www.nih.gov/hichd/

Or

European Society for Immunodeficiencies (ESID)
c/o Dr. Esther de Vries
Jeroen Bosch Hospital
Dept. Paediatrics
P.O. Box 90153
Hertogenbosch, 5200 ME's
Netherlands
Tel: +31 73-6992965
Fax: +31 73-6992948
Email: [email protected]
Internet: http://www.esid.org