Hi,

I'm RiAnn and I'm a senior in high school. For awhile now, a friend of mine has been insisting he thinks I have this syndrome and wants me to get it checked out. Due to cost issues and a few other reasons, I've avoided going to the doctor. I'm not really bothered by anything other than a near constant ache in the joints of my hands and wrists; occasionally in my feet and ankles as well; and recurring headaches. I'm very double jointed, and can push my shoulders, hips, fingers, and several toes in and out of place at will. My friend has become more and more pushy about seeing a doctor. He seems to think that my headaches and memory problems are a sign of something dangerous, but I've had those since I was small. Even my mother has reoccurring migraines. He finally agreed to back off and stop bugging me if I contacted someone who knew more about the syndrome online and got their opinion, so that's why I'm messaging you. Is this syndrome dangerous? What is your opinion of my 'symptoms'? Thank you so much for your time, and I'm sorry for bothering you.

RiAnn

First off tell your friend to mind their own business. Your medical problems are your own.

As well, we're volunteers and precious few of us have any sort of medical credentials. We're all pretty much going to tell you to see your family doctor. This is the first I have heard of this syndrome and all the information I have about it is from Google. Information that you could've gotten on your own.

From what I can read, you might have it, but it doesn't explain your headaches or memory problems. The disorder in question is one of collagen, while most severe genetic disorder tends to affect the brain in some way, for example trisomy 22, this one doesn't.

Your friend has a good idea. You should see a doctor. Get your parents to take you to one. Looking online for an answer is akin to trying to find a diamond in a glass of tap water.