Hi. I do need some help please. I am 25. Got bi-temporal epilepsy out of the blue when 16. Had brain surgery 4 years ago for one side. Fell had a concussion. Developed SPS. IVIG doesn't work, muscle relaxants don't work, had plasma exchange once because of high anti gad levels in blood. I get different answers from different doctors because I'm called complicated. Idk what to do or what hospitals to go to or what specialists to see. Spasms hurt bad, body can't control temp, have acid reflux plus gasritis so its hard to eat a lot. It is hard but does anyone know anyone or anywhere in NY I can possibly can't answers from. Neuro has me on Valium but Primary thinks its dangerous. Been in rehab a few times all they want to do is out me ina wheelchair or walker. I do PTherapy though. Not much help.