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hollie1988
Apr 9, 2009, 05:58 PM
I have my mother she is very very sick
She has MS
Its hard for me to let it go and have fun with ny family and friends
Could someone help me with that?
I don't know how to explaine

N0help4u
Apr 9, 2009, 06:05 PM
You can check with Respite or some organization that helps give people a break from caring for an ill loved one.
Also if you are in the USA you can also check on a program that pays you for caring for someone that is chronically ill.
There are supplements for MS but I have to check and get back I can't remember them right now.

tickle
Apr 9, 2009, 06:06 PM
Hollie, I don't know what you are really trying to say. Your mom has muscular distrophy, that I get and you are the major caregiver I am assuming. I know how bad MS can get and is she on proper medication to lessen the pain ?

You feel guilty because you would like to go out and enjoy yourself, right ?

Ms tick

hollie1988
Apr 9, 2009, 06:37 PM
You can check with Respite or some organization that helps give people a break from caring for an ill loved one.
Also if you are in the USA you can also check on a program that pays you for caring for someone that is chronically ill.
There are supplements for MS but I have to check and get back I can't remember them right now.

My nana takes care of her and I'm not there all the time so its hard 2 not think about it @ times

hollie1988
Apr 9, 2009, 06:39 PM
hollie, I dont know what you are really trying to say. Your mom has muscular distrophy, that i get and you are the major caregiver I am assuming. I know how bad MS can get and is she on proper medication to lessen the pain ?

You feel guilty because you would like to go out and enjoy yourself, right ?

ms tick


My nana takes care of her
I don't live there
I'm not there all the time so it scares me to know what's going to happen next

taoplr
Apr 9, 2009, 06:45 PM
Hollie, your mother's condition is a reality. It's not going away. The best thing you can do is let go of your resistance to this reality and accept it. Let the truth of it wash through you like water. Then, you can just love her and be there for her. When she's gone, you will be glad that you did.

Your mother's condition is nobody's fault. There is no hidden meaning in it, no message about you or your family or anything else. There is no need for having uncomfortable feelings about having fun, being happy, or celebrating your life. As her MS progresses, she will enjoy life through your joy and well being. Don't take that away from her by keeping yourself from happiness.

Let go.

hollie1988
Apr 9, 2009, 06:59 PM
Hollie, your mother's condition is a reality. It's not going away. The best thing you can do is let go of your resistance to this reality and accept it. Let the truth of it wash through you like water. Then, you can just love her and be there for her. When she's gone, you will be glad that you did.

Your mother's condition is nobody's fault. There is no hidden meaning in it, no message about you or your family or anything else. There is no need for having uncomfortable feelings about having fun, being happy, or celebrating your life. As her MS progresses, she will enjoy life through your joy and well being. Don't take that away from her by keeping yourself from happiness.

Let go.

I totally agree with you on that
When I'm jez sitting around or don't have anything 2 do then that's when it hits me
But when I'm really into something I don't think about anything but what I'm doing or about my daughters and fiancé

Ana52408
Apr 9, 2009, 07:18 PM
Call her daily and see how she's doing,talk to her and tell her how much you love her so she can feel happy and you can make yourself happier. Talk about how your day was, talk to your nana and ask her how she was doing on such specific day and maybe that will comfort her a little. Also help her maybe get the medication and doctors she needs! <3

hollie1988
Apr 9, 2009, 07:31 PM
Call her daily and see how she's doing,talk to her and tell her how much you love her so she can feel happy and you can make yourself happier. Talk about how your day was, talk to your nana and ask her how she was doing on such specific day and maybe that will comfort her a little. Also help her maybe get the medication and doctors she needs! <3

Its hard for me to talk to my mom because she shakes and I can't understand her so my nana has to talk for us.
There's times I can talk to her on the phone
See I have a hearing problem
I was born with it

Ana52408
Apr 9, 2009, 07:41 PM
Im sorry to hear that :/

Well are you sure you can't visit? Does she live in another country?

Well how about this!!



SEND HER A LETTER OR AN E-MAIL!!

Maybe its not phone to phone but your nana can read to her and she can reply perfectly fine telling your nana what to say... hope this idea helps!

hollie1988
Apr 9, 2009, 07:52 PM
Im sorry to hear that :/

Well are you sure you can't visit? does she live in another country?

well how about this!!!!!!



SEND HER A LETTER OR AN E-MAIL!!!!!

maybe its not phone to phone but your nana can read to her and she can reply back perfectly fine telling your nana what to say...hope this idea helps!

Yea I go see her
She lives 20 minutes from me
My nana can't read

Ana52408
Apr 9, 2009, 07:58 PM
Oh OK! Then go visit her more often!


Sorry to hear that, then you should visit her more often hun<3

hollie1988
Apr 9, 2009, 08:10 PM
oh ok!! then go visit


sorry to hear that, then you should visit her more often hun<3
Yea I do
Its sad that she can't play with her grandkids
It hurts me that she can't be like other mom like going shopping or playing around and have fun

Ana52408
Apr 9, 2009, 08:14 PM
I understand you honey<3


And that's life but I know you can be strong enough to live up to it and be there for your mom like she was there for you all these years :)

hollie1988
Apr 9, 2009, 08:18 PM
I understand you honey<3


and that's life but i know you can be strong enough to live up to it and be there for your mom like she was there for you all these years :)

Yea
I always say
"WHATEVER HAPPENS, HAPPENS FOR A REASON"

Ana52408
Apr 9, 2009, 08:22 PM
& whatever is meant to be will always find its way :)


So let it be, but visit her, be with her, she will be happy! On your spare time during the day go visit her, it will mean a lottt! <3

hollie1988
Apr 9, 2009, 08:24 PM
& whatever is meant to be will always find its way :)


so let it be, but visit her, be with her, she will be happy! on your spare time during the day go visit her, it will mean a lottt! <3

Yea that's really all I can do is be there and get her whatever she needs