View Full Version : How long to get off fentanyl?
asking
May 27, 2008, 11:37 PM
Three years ago after a spinal fusion, because of chronic pain, my doctor put me on the fentanyl patch. It didn't last three days as advertised and I kept going into withdrawal so my doctor kept upping the dose.--25 to 50 to 75 mcg, which only made me swing wildly from feeling good to being in withdrawal every other day. I told her, but she had no idea why I was feeling that way. I finally realized I needed to take a lower dose more often--every 48 hours instead of every 72. I came down from 75 mcg to 50 mcg. Two years ago and began putting on a new patch every other day. This made it possible for rme to work for the first time. Two weeks ago, I reduced from 50 mcg to 25 mcg and this weekend I'm going to go to zero, I hope. But since I came down, I feel exhausted a lot and keep having chills and cramps. How long is this going to go on? A month? Longer? (I still have pain, but I want to try functioning without the fentanyl, which I think is more trouble than it's worth.)
I am also on a low dose of methadone, also for pain, 2.5 mg per day, but if I miss the dose, I feel awful. I would really like to get off both drugs, but am wondering how long the withdrawal is going to last. I have work I need to get done and it's really hard to work when I feel so tired. I have never behaved like an addict in the sense of getting high or looking forward to the drugs--in fact, I forget to take them sometimes. But I've been on so long, I am wondering how dependent my body is. I haven't found anything on the internet about how long withdrawal lasts, except from people who have abused the drug, which I didn't, to my knowledge. Most people seem to have used them only for a few months, not three years! Will that make a difference? Also I am 53...
Thanks,
asking
asking
Jun 2, 2008, 08:09 PM
Well, I'm off. Day 4 and I feel tired and hot--like having a sunburn in my bones. Reading elsewhere on the internet, looks like a month is the total time until you feel half normal. Unless you are on a much higher dose--like someone on 150 mcg patch took about 6 weeks and it was very hard for her. The worst is the anxiety and shaking. If my doctors had warned me about this when offering it, it would have been nice. Also, for anyone who stumbles on this, if you are having bouts of pain and comfort on the fentanyl patch, DON'T let your doctor increase the dose. If you go to a higher dose, you will just have more exaggerated ups and downs. Instead, ask him or her to prescribe the patch every 48 hours instead of every 72. The doctor CAN do that. They just have to fill out some paper work. Make them do it.
And if you are thinking of going on a fentanyl patch, think twice. It is effective for pain control, but has many problems and is hard to get off--though not impossible by any means. Much easier that quitting smoking!
asking
Aug 23, 2008, 08:15 AM
To get off the fentanyl patch -- a dose of 50 mcg every 48 hours -- I went off in stages. First I went cold turkey for about 36 hours and then went to a 25 mcg patch. The worst was over in 5 days, still crummy for 10, felt decent in about 3 weeks. I did the same thing again except I went to no patch. I was still on 2.5 mcg/day of methadone throughout this and after 3 weeks without the patch I still felt awful (I also had a bad sinus infection), so the doctor upped me to 5 mcg methadone. I felt better after that and stabilized about a month out.
I still have chronic pain but it is not significantly worse without the fentanyl patch, although it's been worse lately, but then I often seem to say that. Not sure why. I may have some undiagnosed condition like MS that comes and goes.
I am still on 5 mcg of methadone. I take that in two doses of 2.5 mcg 12 hours apart. It turned out that once I was off the fentanyl patch, it became really obvious that I was going into withdrawal from the methadone after only 12 hours. I thought the methadone was smoothing out the cycles from the fentanyl, but it may have been the other way around.
Anyway, getting off the methadone is my next project. I read it's difficult because of the long half life, but I'm on a super low dose and some people just laugh at the amount. I must be really sensitive, since I go into withdrawal really quickly if I forget to take it, which I do a lot.
Since no one is answering here, I'll just treat this like my own drug withdrawal blog. :)
asking
Aug 23, 2008, 08:59 AM
When the pain is so bad I can't sleep or function, I take vicodin, about once every ten days. I think I would continue that without the methadone. I'm not a masochist. (I can't take acetomenophin or ibuprofen.)
julbox1999
Aug 24, 2008, 03:37 PM
I've never been addicted to fentanyl or methadone, but had a real bad addiction problem with lortab/vicodin/percocet which from what I understand are the same when it comes to withdrawl feelings. It is the worst! I can tell you from my experience that the cramping last for a couple of weeks off and on and your digestive system doesn't return to normal for a couple of months. As far as sleep is concerned, you will sleep but in very small increments. Just be thankful when you do. Normal sleep patterns won't return for about three to six months. Please feel free to ask me any questions because I can sympathize with you 100%. Just because you don't take them to get high, doesn't mean your body won't become addicted, it will.
asking
Aug 24, 2008, 05:37 PM
Thanks, julbox! I appreciate your answering. I agree that it is about the same. I have read around on boards for people with addictions and I feel a lot more sympathy for that situation now. As far as I can tell, illegal drugs and the prescription drug industry aren't that different.
It does seem like it took me a lot longer to feel normal than the doctors said. My regular doctor told me I'd be off the fentanyl in a week or 10 days, which wasn't true. I was still having cramps off and on for weeks. (I was on the fentanyl for 3+ years.)
I guess my main question now is about whether to try to taper or just plan a week's "vacation" to go cold turkey. When I try to cut back even a tiny bit I feel awful and don't get anything done. But maybe that's just me or me and the methadone...
Thanks again for answering.
J_9
Aug 24, 2008, 06:31 PM
Asking,
I wish I could answer your question, but this time I am truly baffled.
asking
Aug 24, 2008, 07:30 PM
Thanks j-9. I'll figure it out. But nice of you to comment.
KISS
Aug 24, 2008, 07:45 PM
You might be predisposed for additive behavior. As an example, if alcoholism runs in the family, it might be very easy for you to get addicted.
Tapering is always the way to go, but eventually you can't go any lower in dosage. What you don't know is if going cold turkey will bring about symptoms that are a medical emergency.
I know the addiction cycle (rebound headache) and yes, it's tough. Once is enough. Been taking the same med for 25+ years. No sign of addiction.
Fenatyl brings some unique problems and you did manage to "substitute", so the "dose" could be reduced even further.
If you can't reduce, try to increase the time between doses even if it's 2 hours at a time.
asking
Aug 24, 2008, 08:15 PM
You might be predisposed for additive behavior. As an example, if alcoholism runs in the family, it might be very easy for you to get addicted.
KISS, Thanks for you thoughts. I know you mean to help, but I feel slightly annoyed to have you tell me I am showing "addictive behavior." I am not predisposed to addictions and I've become sensitive about this. Unless you count coffee (I drink one cup a day) or posting here, I have never had any other physical dependencies. There is no alcoholism in my family. This is a physical dependency caused by the drugs that were prescribed to control pain, not "addictive behavior." It's relevant that I do not get high off these drugs, never take more than the minimum and frequently forget to take them. I do think there are parallels between the legal drug industry and the illegal drug industry, but that doesn't turn me into someone who is out of control. If anything, my problem is that I am too high functioning, in that I can't just vanish for a few weeks to be in withdrawal.
In order to get off the fentanyl, I basically had to quit working for 6 weeks. It's not easy to schedule something like that, which is why it took me so long to do it. As a direct result of kicking the fentanyl, I lost a client for my business. I have a lot of sympathy for people with drug dependencies, however they started, whether through addictive behavior or a doctor's prescription, because once you are on an opiate, it's hard to stop without bringing your whole life to a stop. If you have responsibilities like kids and no network--partner, family--to take up the slack, then you are pretty much stuck. That's what happened to me.
Tapering is always the way to go, but eventually you can't go any lower in dosage. What you don't know is if going cold turkey will bring about symptoms that are a medical emergency.
I don't think that going cold turkey from 5 mg of methadone would bring on a medical emergency. Other people take 100 to 300 mg a day. I just want to be able to keep functioning at a reasonably high level.
[/QUOTE]If you can't reduce, try to increase the time between doses even if it's 2 hours at a time[/QUOTE].
This seems like a good idea. But if I delay 3 hours a day and get back around the clock (in 8 days), then what?
Very hard to reduce in small increments, since the pills are tiny and hard to break into regular size pieces. Pharmacist did not have any bigger pills or smaller doses. I asked.
I am stumped too, and I guess I'm just going to have to tough it out. Maybe I just need to whine!
KISS
Aug 24, 2008, 08:41 PM
I don't blame you for being "slightly annoyed". I used the word "might". What I guess I was trying to say is that you could be too sensitive at this point. My rule is I only take the meds early in the pain phase and only when the trigger is present. My cocktail that I have to choose from is very unusual.
What I was saying is if you are taking a dose 2x/day that's every 12 hrs. Make it every 14 hours, then every 16 hours, then every 18 hrs. A PITA.
Just checked my mini PDR. It says that "Dispersable tablets may be dissolved in 4 oz of water or fruit juice." That's a way you can reduce the dosage. Dissolve into 4 oz. then dump half of that liquid (2 oz) and fill with 2 oz. of water. You just halved the dose. This would be more reliable than cutting.
It's also available in a concentrated liguid form that must be diluted with water.
Onset in 30-60 min and peak in 1.5 to 2 hours.
julbox1999
Aug 24, 2008, 11:04 PM
I don't know how far you are willing to go in order to make this transition a smooth one, but I can tell you from personal experience, there are facilities that can bring you down slowly. They don't push you to go to meetings or admit you are an addict. They are just there for the medical detox part. If you want to know more about let me know and I'll send you my email address. I just doubt if I am allowed to post the name of the facility in this public forum. I'm praying for you because I know how truly crappy you are feeling right now.
asking
Aug 25, 2008, 09:44 AM
Kiss and Julbox, I really appreciate your advice. I think I will try dissolving the pills as KISS suggests. That is a great idea. Thank you so much! It sounds so obvious now that you say it, but I was totally stuck on this problem.
Julbox, if I can't manage that, I hope to ask you for the place you were thinking of.
You are certainly right that I am too sensitive about this.
Kiss, you mentioned an unusual cocktail and I am curious about that if you want to describe it. I take it you have episodes of pain?
star101
Oct 25, 2008, 11:54 AM
I sympathize with you as I am going through the same. Were you ever able to get off fentanyl completely and how hard was it? Do you fell like you are back to normal or are there problems from reducing or getting off the fentanyl. Any information would be appreciated. Thanks, Star
asking
Oct 26, 2008, 12:59 PM
Hi Star,
I did get off the fentanyl! I have been "clean" since June. I wish I had done it a lot sooner, as my pain is the same as before and I feel much better than I did on the fentanyl.
I went cold turkey from 50 micrograms/48 hours to nothing for a long weekend, then put on a 25 mc patch and weathered the continuing withdrawal. That was the most frustrating part, how long that lasted. I felt off for 2-3 weeks. I was just starting to feel better when I repeated this from 25 mcg to no fentanyl.
I went as deep into withdrawal as I could stand for the 4 day weekend, because I hoped that would shorten the total time of feeling crummy. That part wasn't that bad since I wasn't trying to get anything done at all. I just watched movies and did nothing. Both times I hit a really low spot where I got all twitchy and couldn't sleep, lots of anxiety. Nasty feeling. But only for about an hour each time, because the first time I put on the 25 mc patch and took a valium. The second time I took a Norco and took a valium. Valium is really useful to take, but only occasionally, NOT three days in a row or you'll hooked instantly.
The whole thing took longer than I could have wished, but not as horrible as I'd been lead to expect. Like I say, I just wish I'd done it 2 years ago...
Do you have pain? What's your dose?
Blueciel
Sep 26, 2009, 10:29 PM
Hi Asking, I don't know if you ever came back here to check your "personal blog" ;) but I hope that you have had success in getting off the methadone. I'm sorry that in your last post you had to explain to someone what it's like to be on methadone and to get off it. I wish the world knew that no matter how much of an addict/or non addict a person it, if they take any mg of methadone regularly they will be physically dependent on it... (addicted). It's sad that people try to categorized people this way though. Humans are made up of hormones/chemicals and after taking methadone for years, even Mother Theresa would be in pain coming off... this doesn't mean that she needs a 12 step program. Anyway, to answer your question... methadone simply takes a very long time to come off, no matter what the dose you were on. You biggest problem will be long term fatigue and feeling like an elephant is sitting on top of you. You need to just push threw it and eat healthy and take many vitamins. Make yourself exercise. I wish you the best of luck and hope that you are already off it. Congratulations on getting off Fentanyl... that stuff is just plain nasty. I'm just seeing that there are more pages to this... maybe I'll find out your off. Good luck!
daniel mg
Oct 8, 2009, 01:32 PM
My Brother died from Fentanyl patch. It released all at once and caused respiratory failure... STOP TAKING IT NOW!
asking
Oct 8, 2009, 02:23 PM
Daniel, I'm so sorry about your brother. It's good that you are posting about it, to help others.
Fentanyl patches release all at once very easily, especially the older ones. Supposedly, they've made them better. But I had them leak, which is bad and one one time in particular, I had respiratory depression and slept for two days. I woke at some point, could tell my heart was beating really slowly, ripped off the patch and went back to sleep. When I finally woke up again many hours later, I was okay. If I hadn't woken up that time and realized I was in danger, I probably wouldn't be here. When I told my doctor, she just shrugged.
Anyway, I've been fentanyl free since June 2008 and methadone free since December 2008. I still have chronic pain and have been diagnosed with rheumatoid arthritis. But I don't take an opiates except for a vicodin maybe every other month when things are bad.
I think I posted about the methadone withdrawal elsewhere. It was much worse than the fentanyl and took me three to four months to get off the lowest dose available.
KISS
Oct 8, 2009, 04:23 PM
Daniel. So sorry about your brother.
My elderly mother started to take the patch and she cut the envelope and I'd say almost died too. Arthritus made it tough for her to tear the patches open. I know we were able to take care of the resulting problems without major intervention.
Yep. Just plain nasty.
DiegoGirl
Dec 14, 2009, 05:34 PM
Hi Asking. I am currently on 100 mcg Fentanyl patch. I like you had no idea the depth of addiction this patch could create. I was in a very bad accident on July 23rd. I was hit by a drunk driver while riding my bicycle. I had a crushed spine and broken pelvis. Those were the worst injuries, all others were just minor. From the second day I was in the ICU I was put on this patch. I didn't even know it was there. They just changed it every 3 days. I ended up having a spinal fusion of the T11-L3 and a pin placement in my pelvis and sacrum. The patch has been the only thing that has managed the pain. I have been on it for 5 months now. I want to get off. As of right now it is the only narcotic I am on. I have Oxycontin and Valium for breakthrough pain, but don't really take it. My doctor had me changing the patch every 48 hours and for the past 2 patches I have been wearing them for 72. I went into a pretty bad withdrawl episode and it really scared me. I discussed this with my doctor, and we have come up with a plan to wean me off the patch. I am very scared of the withdrawals however. I am to go on a 75 mcg and 12.5 mcg, and wean the 12.5 each month. I will go to 75,then 50 & 12.5, then 50, then 25 & 12.5, then 25, then 12.5. He says that the w/d should not be bad. He stated that he could prescribe me Clonidine to help if I need it. I guess I am just wanting some re-assurance that I can do this, and not breakdown. Especially in front of my kids. I am a Stay at home Mom. My family has been through so much with this accident, and I can't bear to put them through anything more. I am sort of sad that I will have to "detox" from drugs as well. All of this on top of recovering from my injuries. So I hope that you are still reading this, and that you can give me a ray of hope. Thank you.
asking
Dec 14, 2009, 07:47 PM
DiegoGirl,
I'm really sorry about your accident. And I hope you recover well. Be patient with yourself. It takes a long time to get over this kind of thing, longer than the doctors realize. In my case, it was several years, but I now think that being on the fentanyl slowed my recovery. So you are doing the right thing.
I'll tell you what I know based mainly on my own experiences. First, do not use the valium more than once or twice a week. Getting off a valium addiction is Harder than getting off Fentanyl. They put me on valium for five months and when I weaned myself I had terrible anxiety and nobody warned me. It lasted about a month. So if you have anxiety, it could be a reaction to the valium. I don't know anything about oxycontin, except the obvious, that it's addictive.
You can get off the fentanyl. It was not nearly as bad as I expected and not as bad as the methadone turned out to be (I was taking only 2.5 mg of methadone for pain most of the time). I think if you are going to be on a patch at all, use it every 48 hours. Otherwise, it's all ups and downs. Exhausting withdrawal.
I was on a 75 mcg patch and went to 50. I was on 50 for a long time. Then I went from 50 to 25. I did not taper. I just took off the patch and went without a patch for as long as I could stand it and then put on a 25 mcg patch. I personally wanted it to be over with, so I was looking for how much withdrawal I could stand at once. Like I say, most of it was not that bad.
I only had one bad spell, late one night about 40 hours after I took off the 50 mcg patch. I had what the junkies used to call the heebie jeebies--a feeling of intense apprehension. Plus my legs kept kicking. You'll know what it is if you get there. I hated it, so I took a valium and a vicodin, which brought me right back up to a tolerable level and I could sleep. The next morning it was just sleepiness and withdrawal. My pain was not a lot worse.
Rent a bunch a movies, stock the house with food and just plan a 4-5 day vacation with no obligations. Ideally, you'll have company, someone to give you hugs and bring you tea. It's not that bad. I felt half decent by the end of the week, although not myself for another couple of weeks. Then I went from 25 mcg to zero. Same story. NOT that hard. I'd say once I was off completely, there was vague residual feelings for a few months. But most of that was minor compared to the first week.
If I'd known how easy it would be I would have done it years earlier.
My fusion was in November 2004 and I was still on fentanyl in early 2008. I can definitely say that I have less pain without the fentanyl.
Good luck!
I'll watch for posts here if you want to talk about how it's going.
asking
Dec 14, 2009, 08:39 PM
PS. I would take the Clonidine. Get the prescription now and then use if you need it. I asked my doctor for it when I was in methadone withdrawal and she would not prescribe it over the phone and I was too tired to go in and get it.
My kids were great. I'm a single mother with two teens. They helped me through the first weekend of withdrawal and were really sweet. I did the second weekend at a friend's house to spare them. I'm not sure I needed to do that. Another consideration for me was that their father would find out and accuse me of being a drug addict and try to make trouble for me. But I don't think they ever told him.
I was talking to them recently about it. I said I was embarrassed about it and they said, basically, "Oh, no! We think you were really brave. It was not your fault." so I'm hoping your kids are the same. :)
JASMINEANDJEDI
Jun 28, 2010, 09:54 AM
Hi there: I have been on the Fentanyl 75 for 5 months - I went cold turkey this morning - I am on it to control pain but my pain goes into remission and I don't need the pain meds around the clock so I want to get off this 24/7 medication - I have read a lot of pros and cons on going cold turkey but I think that will be best for me. It has been 3 hrs now and I have had the chills and I am axius but I feel this will pass - I will keepyou posted if you like :-)
DrBill100
Jun 28, 2010, 10:28 AM
Hi there: I have been on the Fentanyl 75 for 5 months - i went cold turkey this morning - i am on it to control pain but my pain goes into remission and i dont need the pain meds around the clock so i want to get off this 24/7 medication - i have read a lot of pros and cons on going cold turkey but i think that will be best for me. it has been 3 hrs now and i have had the chills and i am axius but i feel this will pass - i will keepyou posted if you like :-)
Please do. Anxious to hear how you're doing
asking
Jun 28, 2010, 10:37 AM
Hi Jasmine.
Good for you! Do you have any patches that are lower dose? I think you should attempt the cold turkey if that's what you want to do. But it would be easier to do it in stages. I went from 75 to 50 and from 50 to 25, then off completely. It was not nearly as bad as I expected.
The worst part for me was intense anxiety, which came on about 24 hours after I took the patch off. I had some valium. A single 5mg valium and one vicodin, to take the opiate withdrawal edge off, made it possible for me to get some sleep and get past that one bad stage.
Anyway, if you have trouble with this, I highly recommend trying again with some pharmaceutical preparation.
Good luck! We look forward to hearing how you are doing.
dberryk03
Mar 30, 2011, 12:54 PM
If you have insurance go to a withdrawal spa, and don't suffer. If you have a will to live do it painfree. Pray for God to lead you and listen quietly for his answer.
RichardGreat11
Dec 2, 2011, 07:56 AM
There's a way to get off opiates if you are dedicated and have control. Here is something that has worked for a few people I know that are very close to me. One person was highly addicted to 80mg oxy's. What he did was stop taking the oxy until you are in full withdrawal than jump on suboxone (wutever dose your dr gives u) take that for about 2 weeks. What the 2 weeks of subs is doing is killing the oxy withdrawals. Now the 3rd week you can either quit the subs or drop down to half of your dose than quit. You will have some sweating and minor discomfort for a week or 2 after but you will notice that you feel a lot better by the end of the months. During all of this its good to be taking Wellbutrin for anxiety and depression, also take ibuprofen the strongest you can find at your local drug store. Take the ibuprofen for pain and hot flashes and cold sweats.
Essentially you can do this with any opiates. For example you are dependent of fentanyl so you would be able to take lets say 20mg oxy or 40mg oxy's for 2 weeks to kill the fentanyl withdrawals than quit the oxy. Than deal with sweats and minor discomfort for a few weeks.
I AM NOT A DOCTOR lol and I am only speaking based on my personal life experiences...
Dawno
Dec 7, 2011, 12:54 PM
I've been using the Mylan brand of the fentanyl patch for a year now. I had my tailbone removed, and then 8 months later had to have a hysterectomy and other work done in the same general area. I was on 250 micrograms for most of the year, although I bumped up to 275 shortly after the second surgery.
I started physical therapy and began to feel a bit better. Then, one weekend while packing to camp with the kids (my first big excursion) I misplaced my last 250 patches of the month. I had one day of cold turkey withdrawal until I could see my doctor to get more prescribed. That day, and my ongoing physical therapy, made me decide to get off the patches. I was surprised when my doctor was vague when I asked how long it would take me to titrate. She kept answering, "It's different for everyone." she prescribed 200 mg that day and it was my pharmacist who gave me advice. He said, "When it's time to put on your next 200, try 100 and see what happens." Surprisingly, NOTHING happened!
However, after that, it did begin to get more challenging going down. Because I have the MYLAN brand, which is one, flat sticker, (not the patches with the plastic reservoir) I am able to CUT the 100 patches into quadrants and titrate as quickly or slowly as my body can take it. For me, I have gone down so far from the 250 I was on to 12.5 micrograms in 22 days without too, too much misery. I am changing them out every two days and going down about every 4 days. I did 100, 75, 50, 37, 25, 18, and now 12... I plan to do 6 mg for a few days and then go off. I tried to go even faster, for example, from 100 to 50, but the cold sweats and exhaustion were too much for me that way.
Since getting down below 50 mg, my pain has become an issue again, and I have used 1-2 dilaudid for that. (I had been averaging one dilaudid per day for breakthrough pain.) So... That will be my next one to taper off, but I've been on and off 1-2 pills per day several times, so I don't expect it to be anything at all as difficult as the patches have been. The PT is also continuing to make a difference, so I am hopeful.
I read people say they would never have gone on them if they knew how difficult it was to get off- I don't feel I had any choice at the time given the level of pain the surgery created. (the tailbone was removed as a last ditch effort by the Mayo Clinic to end a year on sudden-onset pain with no known reason!)
Oh, the best thing is that my appetite has been extremely affected and I'm losing some of the weight I've gained since being so immmobile.
I hope this is encouraging- you CAN get off- it takes determination- and I never went back up to a previous level once I came down- the bad feelings of adjusting to a lower level passed after about 2 days, and then I just went down again, which is why it's gone relatively quickly for me. I wish you the best! You can do it!
yzrowell
Mar 6, 2012, 03:12 PM
I have been on the patch for 10 years up to 100 every 48 hours . I got off 12 years ago and almost died I lay in bed for 4 months and cried like a baby I lost my family and my life. I was then in a head on collision and was injured badly the girl who hit me died, I have now been on the patch for ten years and do not want to go through the withdrawals again, I think about dying constantly but tell no one . I need help but cannot afford the 35000 for the Wiesman method . I am a veteran so the meds are free but I know I cannot go through reducing the amount I take because it would be a one year of hell. You cannot reduce the amount because it is like a slow death, I know I tried . If anyone can pray for me I would appreciate it. If anyone can help me please let me know . Thanks for reading this and I am open to any help . GW
david501961
Apr 18, 2012, 09:21 AM
Fentanyl is a sleeping monster I have been on it for over 6 years I tried to change meds I was on the 50 patch they put me on loratab 20 which has to be hand made and I went into withdraul in 3 days it was the most suffering I ever went through I had to go back on the fentyanyl in a week I could not take it then again I wanted off and they tried 30mg morphine same thing other drugs are like taking water with the tabs and the morphine I cramped my whole body ached I would be cold then hot had fazes of weakness and sweating felt confused and disorginized could not sleep which I hardly sleep when on the fentanyl I also have kidney stones on a regular basis and when I go to rthe emergency room the meds they give hardly work only delodid works and that is hard to get so this has been really bad I know that it's the same as herion and getting off that is said to be one of the worst to quit I am studding on getting off the fentanyl patch I am on the 75 patch every 2 days and now its starting not to last but one day and I am going into withdrawl every time this has happened they have went up on the dose I am now to the point where I want off but I do have really bad spinal pain so I just don't know what to do I may have to go into the hospital this time if you are thinking about getting on this drug fentanyl I would advise you not to itsa monster david
bigrigdriver
Jun 10, 2012, 08:52 AM
I have been on the patch at 100 mcg/mg x3 days for years but I want to go back to driving tractor trailers and as you can guess, and as it should be, I can not get medically cleared while I am on the patch. As I read your posts I loose all hope of ever getting back behind the wheel. I am thinking the only way to do it is to get admitted to the hospital's detox program and try it that way. Have any of you tried to do it that way? If so, was it successful or not?
My prayers to ALL of you as we struggle to get ourselves off this awful drug. I also think that the doctors need to be more aware of what the potential addiction problems they are giving to their patients by prescribing this med without really, and I mean REALLY sitting down with the patient and explaining what lies ahead if they chose to use this medication, I mean DRUG!
Good luck to all,
DrBill100
Jun 10, 2012, 09:41 AM
I have been on the patch at 100 mcg/mg x3 days for years but I want to go back to driving tractor trailers and as you can guess, and as it should be, I can not get medically cleared while I am on the patch. As I read your posts I loose all hope of ever getting back behind the wheel. I am thinking the only way to do it is to get admitted to the hospital's detox program and try it that way. Have any of you tried to do it that way? If so, was it successful or not?
My prayers to ALL of you as we struggle to get ourselves off this awful drug. I also think that the doctors need to be more aware of what the potential addiction problems they are giving to their patients by prescribing this med without really, and I mean REALLY sitting down with the patient and explaining what lies ahead if they chose to use this medication, I mean DRUG!
Good luck to all,
Before committing to a detox program please take the time to confer with an addiction medicine specialist. Not an MRO or company doctor but one that is board certified and has a specialty practice in addiction medicine.
If available to you a detox program is helpful but you must also consider the possibility of re-emergent pain symptoms. That is, the reason you were originally prescribed Fentanyl (or any narcotic). Is that condition still existent and how will you deal with it?
While the term "addiction" is often misapplied to people in your circumstance it is physical dependence that is the primary problem. There is a clear distinction between the two phenomena.
Once the physical dependence is abated there is no emotional (psychological) need for the drug(s). A capable detox is very helpful in that regard as they understand, can predict and control the withdrawal symptoms and greatly alleviate the associated discomfort. Including any potential dangers.
D-Rock1964
Sep 6, 2012, 09:05 AM
I have been on Fentanyl 100mg for a little over a year for a broken neck and failed neck surgery which left me with chronic pain. It turned me into a Monster and I was never able to bring myself to get off of it until last week, I just woke up and went to change my patch and decided just to quit, it was time so now is day 10 and I can tell you the first two days were hard, I just wanted to go put my patch on but once I got through that I was fine until day 5 when my pain gradually started coming back and now on day 10 my pain is unbearable and I am so dizzy. I have the most trouble at night at bedtime, I have a lot of anxiety and cramps in my legs so I don't get much sleep. And then every morning at 4 a.m. it hits me again. Does anyone who's gone cold turkey know whats next for me or how long this crap lasts?!!!
THANKS GUYS!
D-Rock1964
Sep 6, 2012, 09:27 AM
[B]I am 48 and have been on the 100mg patch for over a year and I just stared getting off the patch cold turkey, the key to getting off is just like anything else, you have to want to and you have to work at it and different symptoms pop up everyday. My first 2 days were just wanting the patch like a smoker might want a cigarette or a drunk might want a drink. After that the third day I thought I had it licked then my pain started coming back gradually and I started feeling bad, like the flu and had trouble sleeping, a lot of anxiety at bedtime then again every morning. Then around day 8 I started feeling dizzy and had more pain and now I'm on day 10 my pain is unbearable and am still dizzy and sick feeling and a small amount of depression is setting in. I just hope it's over soon, I had to get off the patch, I was becoming a monster. I was a different person everyday, I could never make plans because I never knew who I'd be that day, it's a bad drug! If your strong and have a family to be there to help you through, you can do it, you just have to want to!
D-ROCK
D-Rock1964
Sep 6, 2012, 09:54 AM
I have been on the patch for 10 years up to 100 every 48 hours . I got off 12 years ago and almost died I lay in bed for 4 months and cried like a baby I lost my family and my life. I was then in a head on collision and was injured badly the girl who hit me died, I have now been on the patch for ten years and do not want to go through the withdrawals again, I think about dying constantly but tell no one . I need help but cannot afford the 35000 for the Wiesman method . I am a veteran so the meds are free but I know I cannot go through reducing the amount I take because it would be a one year of hell. You cannot reduce the amount because it is like a slow death, I know I tried . If anyone can pray for me I would appreciate it. If anyone can help me please let me know . Thanks for reading this and I am open to any help . GW
I will surely pray for you, that has what's helped me these past 10 days, I quit cold turkey 10 days ago and believe me, it's not easy at all but it will be worth it in the end. I was on 100mg patches for over a year for a broken neck and failed neck surgery 5 years ago, I'd tried every drug for pain and when I found Fentanyl I thought it was great then I started becoming a different person everyday and I was destroying my family so last week I just said enough is enough and I was ready to quit so I did and it's not easy but I'm going to beat this, you have to want to do it, just like anything else. So yes, you have my prayers and there are people just like you out there, you're not alone!
AlliBug2003
Jun 4, 2013, 06:04 PM
Dear Asking,
I am going through the same problem that you went through but only with Fentanyl patches. I was diagnosed with IIH(Idiopathic Intracranial Hypertension) at 16 years old. My doctor put me on 100mg of Fentanyl about a year ago and I have been lowering my dose slowly... My doctor said that was the only way he knew I could get off the patch. So, the doses went from 100, 50, 25, 12.5. I am now on half of 12.5 so about 6mg. And the withdrawal affects are terrible. If you have any information for me please help me...
Thanks.
P.S.
I'm 17.
meduser
Aug 26, 2013, 12:11 PM
Did your withdrawals get bad? I'm on 75mcg for 11 yrs & Dr. is taking me off. I've forgotten to put it on 2x and went through horrible withdrawals.