johndeere08
Apr 9, 2008, 12:13 PM
When I was 12 years old I was diagnosed with bone cancer. I had pain in my leg for 3 years before they found out that it was cancer. Doctors would say I was faking it, or it was growing pains. They took X-rays of my knee, and they said that there was nothing wrong.
In February I sliped on ice and my hip started to hurt instead of my knee. My mom took me to another doctor, and he took an x-ray of my hip. The very next day I was at a children's hospital 90 miles away from home. It was a tumor. They said when I slipped I was lucky I didn't break my femur bone because the tumor had eaten away most of my bone. They did more tests and a biopsy. The cancer had spread to my lungs and my skull... the doctors told my parents I has a 1 out of 10 chance of making it.
I went through intense chemo and radiation, and now today here I am at age 19. I look back and I am happy I made it in all, but it is an everyday struggle. I have so many things wrong with me from the aftermath of chemo and radiation.
One of the biggest things that bugs me right now is that from the radiation my right leg doesn't bend. It holds me back from doing all the things I once loved. I hate going out in public because people always stair at my leg, or they ask me "what did you do?" And then to make things worst about 4 months ago I sliped again and I broke the bone under neath my knee cap. I hyper-extended my knee. I had another surgery they put screws 7 screws in my knee. Now from my hip down to my knee is all medal. My limp is now worst. The doctors said it is going to take time to heal. I am just about always in pain from my leg, and from taking high amounts of pain killers since I was 12 my liver is slowly getting bad,and I am getting stomach ulcers. Where I work I am on my feet all day, I go to college full time and with the rest of my time I sleep. I have a lot of friends but only a few are ones I hang out with. One of my best friends that I hang out with I have noticed that she only likes to hang out with me when she is with friends that know me. I feel she is embarrassed to go to parties with me or hang out with her friends that don't know me that she is trying to impress. It really hurts because we have been friends since 3rd grade. I don't date anyone because I am too embarrassed. And when I do get close to a guy I always back down, or be mean until they go away.
I have always thought about getting my leg amputated.. I see things in the news about people with fake legs that can run, walk normally, and do anything that people can do with a good leg. I hate not being able to ride in the back seat of a car comfortably, go rollerblading, biking, hiking, go to games that you have to sit in the bleachers, take the stairs and keep up with everyone, and most of all- Fit in with everyone else. My family says that is probably the last thing I want, but they don't understand. I think that it would give me more freedom.
I still am scared of the negative things about having a fake leg also, but they don't add up to all the positive things. I love wearing flip-flops in the summer, and all of my cute shoes, and I know I couldn't wear those if I had a fake leg. And then I hear about people who have pain in there leg, but there is nothing there. I am hoping that maybe there is someone on here that has or knows someone with a leg amputation and could give me some advice. Am I taking this too far? Should I just live with what I have. My doctors say I should just be happy I am here, but in the same sense, that's not fair. If that doctor was in my shoes you know damn well he would do anything possible to fix it. I have went through a years worth of physical therapy and it doesn't help. What do I do?
In February I sliped on ice and my hip started to hurt instead of my knee. My mom took me to another doctor, and he took an x-ray of my hip. The very next day I was at a children's hospital 90 miles away from home. It was a tumor. They said when I slipped I was lucky I didn't break my femur bone because the tumor had eaten away most of my bone. They did more tests and a biopsy. The cancer had spread to my lungs and my skull... the doctors told my parents I has a 1 out of 10 chance of making it.
I went through intense chemo and radiation, and now today here I am at age 19. I look back and I am happy I made it in all, but it is an everyday struggle. I have so many things wrong with me from the aftermath of chemo and radiation.
One of the biggest things that bugs me right now is that from the radiation my right leg doesn't bend. It holds me back from doing all the things I once loved. I hate going out in public because people always stair at my leg, or they ask me "what did you do?" And then to make things worst about 4 months ago I sliped again and I broke the bone under neath my knee cap. I hyper-extended my knee. I had another surgery they put screws 7 screws in my knee. Now from my hip down to my knee is all medal. My limp is now worst. The doctors said it is going to take time to heal. I am just about always in pain from my leg, and from taking high amounts of pain killers since I was 12 my liver is slowly getting bad,and I am getting stomach ulcers. Where I work I am on my feet all day, I go to college full time and with the rest of my time I sleep. I have a lot of friends but only a few are ones I hang out with. One of my best friends that I hang out with I have noticed that she only likes to hang out with me when she is with friends that know me. I feel she is embarrassed to go to parties with me or hang out with her friends that don't know me that she is trying to impress. It really hurts because we have been friends since 3rd grade. I don't date anyone because I am too embarrassed. And when I do get close to a guy I always back down, or be mean until they go away.
I have always thought about getting my leg amputated.. I see things in the news about people with fake legs that can run, walk normally, and do anything that people can do with a good leg. I hate not being able to ride in the back seat of a car comfortably, go rollerblading, biking, hiking, go to games that you have to sit in the bleachers, take the stairs and keep up with everyone, and most of all- Fit in with everyone else. My family says that is probably the last thing I want, but they don't understand. I think that it would give me more freedom.
I still am scared of the negative things about having a fake leg also, but they don't add up to all the positive things. I love wearing flip-flops in the summer, and all of my cute shoes, and I know I couldn't wear those if I had a fake leg. And then I hear about people who have pain in there leg, but there is nothing there. I am hoping that maybe there is someone on here that has or knows someone with a leg amputation and could give me some advice. Am I taking this too far? Should I just live with what I have. My doctors say I should just be happy I am here, but in the same sense, that's not fair. If that doctor was in my shoes you know damn well he would do anything possible to fix it. I have went through a years worth of physical therapy and it doesn't help. What do I do?