Hello, my name is trish.I take care of my son who has cornilia de lange syndrom.jimmy has a trach and a g-button ,jimmy has to be watched 24/7.the nursing angency. His dme company are really giving me a hard time with his equiement .I don't know where to go or who to talk to they make me so angry and they have the guts to tell me that if my son wasn't on public aide jimmy would get more help.jimmy is @ home with me 24/7.does anyone or has anyone ever gone threw this if so what did you do or go to get help.:mad::(

Have you tried getting the equipment through his health insurance? Or talking with someone, like a health counselor, to see what can be done? By the way, what state do you live in?