Constantly sore vagina

bEaUtIfUlbRuNeTtE · Jan 30, 2008, 11:18 AM

Okay first thing is first:

What do you mean by sore? Like it stings/burns when you pee?

I have had a UTI before but my vagina wasn't sore. I peed quit frequently and there was blood that came with it but never sore as you say.

As much as I hate saying this but it could possible be herpes. Herpes can form small blisters in the opening of the vagina and can really be painful when peeing. Feel around in the opening of your' vagina. Is there any small bumps that sting when you pass your' fingers by it? Herpes is hard to detect without actually having a break out but you said this has been happeing to you for 2 years and you have been checked when the pain was present right?

jennyclaire · Jan 30, 2008, 11:32 AM

Hiya thanks for answering.
Well, it is kind of like a sore throat but in a different place, and it is always there but when I wee it burns and stings more. I've never had blood, just the pain. I've been tested and been looked at and have no infections like herpes etc. I have only been with two people and they've been tested too. Its a physical thing but just don't know what. I'm so depressed, it's even worse that even the whole internet can't find anything exactly like this

bEaUtIfUlbRuNeTtE · Jan 30, 2008, 01:20 PM

Well hunny, like I said it is hard to detect for herpes unless you have an outbreak. I asked you if you got tested when the pain was occurring, like that day? The doctor(s) could have detected for it but that doesn't mean the results were accurate. I'm not trying to convince you that you do have it but that is what it sounds like.

Well if it is a physical thing then why haven't the doctors named it?

Herpes is not an infection but a virus.

CMM_Kaleido · Jan 30, 2008, 08:28 PM

Have your doctors ruled out bacterial vaginosis (I'm assuming they have) and any hormonal imbalances? Is the pain always there? Do you ever get any days of relief maybe connected to your menstrual cycle?

I know all about unexplained and seemingly undefeatable afflictions taking on a life of their own and causing something called "second fear" where you can make yourself sicker just through the stress of worrying about this thing in your life that you have no control over. It probably feels like it has taken over half of your brain by now. Do you do any physical activities to help funnel off some of your stress? I took up yoga and for that one hour a week I don't think about anything else and I feel normal. Stress affects your hormones, which can affect everything.

Have you tried a doctor who can take a look at your total health? Maybe there is something else going on that is simply manifesting itself in this manner.

Have you ever hear of Dr. Mehmet Oz? He has been featured on the Oprah show many times and seems to be really well informed about a wide variety of health problems, particularly about the interconnectedness of everything that is happening in our bodies. Here's a link to the ask Dr. Oz page on Oprah's website. After years of suffering without explanation it might be worth a shot.

Dr. Mehmet Oz: Ask Dr. Oz

jennyclaire · Jan 31, 2008, 07:47 AM

Hiya. The docs have done a lot of blood tests, not sure about that bacterial thing you menchaned but I'm guessing that something would have shown up on the results if there was any infection type thing. For another reason a while ago, I had hormone tests but they were fine apart from my doc said there were one hormone that I had a bit of a higher level of but it was no problem, I can't remember what the hormone was because it was a while ago but it can't of been a problem as she said it was fine. (Although she's a crap doctor). Yes, I always have the pain, daily, even on periods. I do agree that stress may be making it worse but its still there without the stress. I haven't tried any exercise because it is quite uncomfortable doing any movements sometimes but I will look in to it like you said and I will look at that website. Thank you for your help. I am seeing my consultant next on the 21st to have a camera in my urinary tract that will hurt so much but I know I have to go through it, then I will see him on the 4th March for a consultation. I have decided to really put my views across even more than I already have, if he says there's nothing more to do I'll say that it's already put my life on hold and it may not kill me but I shouldn't have to live with it and I won't live with it. I am trying to look into overactive bladders but can't find anything that says it can make you sore so I doubt that it is connected to that. Thanks

Biclis · Mar 5, 2008, 03:07 PM

Hi, what happened with your consultant?
I'm so sorry you've had to put up with this for years and years, I too have had a similar problem for a few months, and the pain can be extruciating.
In July last year I thought I had cystitis, and drank loads of cranberry juice to try to get rid of it. When it didn't go away I got tested time and time again by my doctor, and she found 'no infection'. I constantly hassled her and other doctors just cos the pain got worse and worse, and my vagina got very sore. Eventually I was given a swab examination and was found to have a particularly bad yeast infection in my vagina (quite high up), so the doctor gave me more treatments to try and get rid of it. It went relatively quickly, but the opening to my vagina was sore and my weeing was still painful. The only thing that has stopped the wee being painful was to literally put absolutely loads of thrush (canesten) cream on my clitoris and vagina three times a day. My wee now doesn't hurt, but my vagina is still sore. I've now been diagnosed as also having a latex condom allergy, and just now need time to repair, just cos I'm so terribly sore. It's made worse by my boyfriend who constantly wants sex, whereas I want it but just can't. I'm very depressed about it, and just want to be back to normal. I understand how you feel

jennyclaire · Mar 6, 2008, 03:52 AM

Thank you for your understanding. It's horrible isn't it. I just have no life. I feel I am being treated sp badly, passed on and on, more doctors looking and making the pain worse with examinations. I had a cystoscopy, they said there was inflamation and chronic cervictis, which at the follow up appointment (with another new doctor that doesn't understand). I asked about this condition and he said its normal and nothing to worry about, I have read up on this and it isn't normal at all, it can cause you to be infertile and if left develop even more serious conditions of the whole pelvic area. I am going to write a complaint letter to the consultant I have been seeing because I have really been treated so badly and am not being listened to. Also if I do become infertile, they'll be in big trouble. I'll make sure. I have yet another procedure, a camera through my stomach to look at my ovaries etc. I know this will result in nothing and need them 2 sort out the inflamation and that chronic cervictis, but they are just being lazy. The inflamation and cervictis is most definitely causing my soreness. I am seriously at breaking point now, I can't even go out the house, and everyone constantly talking about sex etc, makes me want to burst in to tears. I have never slept around, I have a long term fianc? That says he's ok wiv it but how long can it last really. I don't go a day without people bringing up sex. Like you, I want sex and sometimes I have to pretend I am not too sore to please my fella, but even that is months apart.

Biclis · Mar 6, 2008, 10:44 AM

I'm wondering, just what country you're in? I can't imagine this sort of treatment happening where I am from; the UK. In case you aren't from the uk, I am going to post you a link to the NHS Direct website, where you can find out more about your condition, and treatments. It may even be worth coming to this country for treatment if you can get it, because we have expert gynaecologists who could probably help you immensely.
NHS Direct - Health & Medical Information
If you cannot find anything on there, search for treatments available in the UK. You are right, you do not need to put up with this.
You may have already read this but I shall paste it here for you to read too;
Cervicitis: Causes and Cures. Keep me updated, and in the meantime I say do not have sex, make a pact not to have sex until you are better. If your fianc? Is the man for you, he will understand.

lighterstill · Mar 29, 2008, 03:15 PM

Hi - I too have had pain due to uti (urinary tract infection) twice in the last 3 months. As well as a yeast infection - accompanying all of these probs was vaginal pain - burning, stabbing sometimes.
It's different than the burning that you feel when you pee due to an infection, and I'm not sure, like you, about its cause. Have had an ultrasound recently & on a referral list for gynecology. I suspect it could be the nerve-based disorder, vulvar vestibulitis, but have not yet been diagnosed.
Have you heard of this disorder & do you think you might have it?
See link to article from the American Academy of Family Physician - read the illustrative case - it may be similar to what you're feeling as well. Hope your symptoms improve!
Vulvodynia and Vulvar Vestibulitis: Challenges in Diagnosis and Management - March 15, 1999 - American Academy of Family Physicians

Constantly sore vagina

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