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Topazfairy1993 · Jul 19, 2011, 09:16 PM

Hi,
My name is brandie and I was born with Intestinal Gastriscsis. Its where when your in the womb your Abdominal wall doesn't form right leaving a hole where your interstines and sometimes your liver protrude out. Babies born with this usually suffer many problems growning up. They're almost always born early through C-section. Have a scar from almost chest to just below the abdomon. And there is almost always other complications such as hernias scar tissue, in-fertility, pains in their abdomon and emotional trama from the scar and the fact of not having a belly button. Keep in mind almost no gastro baby has the same case. But they were all born the same way. Many don't live through the first surgery and almost always must a baby go through more than one surgery. Being a survivor I was hoping maybe there would be a grant or scholarship for it. Not only for me but for all of the Gastro babies who fought for their lives well before birth and well into it to. Can anyone gan about letting me know if there is and I just can't find it. And if not I'd like to start one for the brave little souls.

Wondergirl · Jul 19, 2011, 11:26 PM

I don't see that there is a grant or scholarship for this specific condition.

One of our experts here, J_9, is a L&D nurse, and may have some suggestions for you. My thoughts include contacting a larger or teaching hospital for their ideas on establishing a scholarship, or perhaps check with the reference desk at your local library in order to identify the appropriate association that would be interested in helping you with this project.

J_9 · Jul 20, 2011, 05:31 AM

Thanks for the heads up WG, but I really don't have anything to add to what you said.

To Topazfairy, I know several people born with your birth defect, and I am sorry you all have had to go through so much. I wish there was more that I could do to help.

Topazfairy1993 · Jul 20, 2011, 06:13 AM

I'm really not trying to sound like someone special trying to get something. It's just. It's a serious disease and very little is known about it. Down to no one knows even one thing for sure that causes it. I just want to help others like me that maybe had it worse than I did. The ones who were in and out of the hospital their whole life from this disease or side effects of it.

J_9 · Jul 20, 2011, 06:20 AM

One of the girls I went to nursing school had a daughter with this, and my husband worked with a woman who recently delivered a baby with Gastro.

I understand completely your want and need to pay it forward.

Have you considered nursing? Maybe L&D or NICU? I wish I could help you with scholarships, but I truly don't know of any.