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This is a story of what im facing daily. Please read this. If your a true friend. I need all the support i can get. First of all, she is now living in Autumn House on West Market. Her name is Christine Houck. She has always been a bit out of it, so you may remember her as that. Anyway, we recently got the doctor's to diagnois her correctly.She has Pick's diease. Pick's Disease is a progressively degenerative neurological disease similar to Alzheimer's Disease for which there is no known prevention, or cure. Pick's Disease affects the frontal and temporal lobes first, with earliest symptoms showing up as changes in personality and a decline in function at home as well as work. Pick's Disease is frequently first diagnosed as stress or depression and then as Alzheimer's disease. The treatment of Pick's disease is the same as for various stages of other dementias such as Alzheimer's. This accounts for so little information being available related specifically to the treatment of Pick's Disease. It took a lot of time and energy to find out what was wrong. My grandmother has been a big help to my father and i so for that i am greatful. Ppl may try to say that they know how i feel, i can tell you u surely do not. My parent's were never really parent's. They didn't understand how to raise a child. My mom has been ill all my life. When i got my first period, i thought i was dying. She didn't explain to me what was going on, she just said it's a girl thing. She never knew how to talk to me when i needed a person to talk to because i was bullied at school. I've delt with this horror more then i can bare and i think it's time for ppl to see what i've gone through and what can happen to your loved ones. My grandfather just died a few months back, as if my mother being ill wasn't enough. His death came as a sudden shock. I thought he would live forever. Back to my mom, she has Pick's and talking to her is like talking to a 5yr old child. She doesn't understand anything. I love my mom, i love my dad. But both, woln't live to see my kids. My dad has been smoking since age 16 or so, he has lung problems. My mom woln't live long with Pick's. So, knowing i'll lose my parent's really upsets me. I know they haven't been the greatest parent's, but i love them anyway. So just remember that and tell your parent's you love them, you never know when it will be there last day. I will be putting more information about my mother's diesase on my blog. Please read it, just to learn. Also, as i've said, if you knew my mother, you are welcome to try to visit her at Autumn House. She needs all the love she can get. If you have read this far, thankyou. I hope this helps you to not take life for granted and understand what i've been going though.
What can i do to feel better? Why am i so depressed? It's making me a crapy person. I tried to kill myself a lot, i don't wanna live sometime's ever tho i have a great fiance. What the heck is wrong with me....
Like I said in my other post.....You have just not found your calling you have your fiance that is the first step.....have you ever thought about trying to work on healing your self and then trying to go to school in a field that would allow you to help teenagers that have had bad or sad up brignings>? If you were able to kill youe self....waht if in your future you were needed to be there for a lonely child who could not relate to everyone else because his situation was like yours....what if youw ere suposed to be the person who founds an orginaztion and provides support for family members of PICK's.....you never know what your calling is....but to end it before you do would be taking yet another thing away from you......I will alway listen if you need to talk !
thanks a lot, you seem pretty awesome. i dont know how to heal. i mean i dont like myself sometimes, but i dont know how to fix it. i've tried but nothing ever works. i dunno
it never works because that part of your mind is stornger than your will currently...you will always battle it....but in your head you must know you will be the victor....its just going to take some time....
I used to never like myself....that took me down a path that I lost eveything and went to jail.
I had to learn to lve myself and realize how storng ones mind really is once you give it what it needs to thrive
Damn, girl, you sure have been dealt a hand at the card table of life. All I can say is if you survive it and get to be a reasonably normal adult, you will be one awesome person. My hat's off to you. I wish I could tell you how to get through it, but I really haven't got a clue. I figure you've got more wisdom than most of us already and every day you live you're getting wiser. Don't give up and really off yourself. Don't put those who care about you through that wringer. It would be cruel. You can do this. I don't know how, but you do.
yea i just feel like giving up sometimes. Cuz im 21, and i feel like a kid. I don't understand a lot of things, and i feel so stupid, i wish i had parent's to teach me what i need to know, but its too late and noe i gotta do it all the hard way...but whats the point.
I never heard of Picks disease, until you have mentioned it here. By bringing this up to the forefront you are doing a great service to understand what happened to your mom, and this gives the chanch for people to look up this disease themselves and learn about it. I read up on it. It is a rarity and hard to diagnose, but it is very rare. I understand that you did not have that good of parents, and believe me I do believe that we have all experianced some kind of abuse. Whether it be emotional, physical or sexual.
I personally believe the reason why people feel down, get depressed and let life get them down is because their outlook on life at the moment is stuck in one spot. For instance your parents and how you were raised is still on your mind and weighs heavily on you. You have not moved past the experianced and that is why you have not healed yet.
So in my own personal experiances. In order to be able to heal from whatever anybodys experiance is. You need to learn how to live each day as if it is a new day. Try not letting your past drag you down. Try not dwelling on a future that is not here yet.. What is most important is this very new day, and what you are going to do today. When you start changing your outlook on life, when you start letting go of the past. That is when the healing will begin and that is when you will be able to grow and heal.
I hope this makes sense to you. There was emotional and physical abuse in my wifes family. There was emotional and sort of physical in mine. I was raised with a step parent who changed when I got older. Especially after seeking out my real father. Everybody has a story in their life and we all could share a lot. I know I have many but I will not share the details because you probably find them boring. lol
Anyway, all I know is that you have a great fiance. You are very intelligent, do not ever think or feel that your stupid because you are not. See everybody has a life experiance. Everybody has different things to learn. Some learn it the hard way, and some not. My feeling is you know a lot more about life then your letting on. Just to let you know. IT IS NEVER EVER TOO LATE. THERE IS NO SUCH THING AS TOO LATE.
IF THIS HAPPEN TO A FAMILY MEMBER OR FRIEND AND OR THINK THEY HAVE A PROBLEM....I WANT U TO KNOW THIS, READ !!!!!
Background: Pick disease (named after Arnold Pick) is a progressive dementia defined by clinical and pathologic criteria. Unlike Alzheimer disease and other dementias that present with cognitive deficits localized to the posterior (parietal) cortex, Pick disease typically affects the frontal and/or temporal lobes. First described in 1892, with the defining pathologic characteristics first reported by Alois Alzheimer in 1911, Pick disease now is considered by some to be part of a "complex" of neurodegenerative disorders with similar or related histopathologic and clinical features (Kertesz, 1994; Kertesz, 2003).
Frontotemporal dementia (of which Pick disease is an example) is a broader term including Pick disease. Frontal lobe dementia is a term signifying neuropsychological features localizing to the frontal lobes. Clinically, Pick disease may be identical or very similar to "frontal lobe degeneration" (Miller, 1997).
Some cases diagnosed premorbidly as Pick disease are shown pathologically to be progressive subcortical gliosis (Neumann, 1967). Other cases may be diagnosed pathologically as dementia lacking distinctive histopathology (Knopman, 1990). A clinical/genetic nosology includes frontotemporal dementia linked to chromosome 17 (Foster, 1997). Primary progressive aphasia (Weintraub, 1990) is a "focal atrophy" syndrome that may be associated with Pick, Alzheimer, or other pathology; clinically the deficit appears restricted to the frontal and/or temporal lobes.
Pick disease is defined pathologically by severe atrophy, neuronal loss, and gliosis. Swollen (ballooned) neurons (Pick cells) and argentophilic neuronal inclusions known as Pick bodies (Jellinger, 1995; Jackson, 1996) disproportionally affect the frontal and temporal cortical regions.
After death, only approximately 5-7% of people meeting clinical criteria for the diagnosis of Pick disease meet strict neuropathologic criteria for the diagnosis (Litvan, 1997). In some clinical settings, most patients with autopsy-confirmed Pick disease have been diagnosed during life as having Alzheimer disease or another neurodegenerative illness (Litvan, 1997).
The disorder is progressive and invariably leads to increasing disability. The disease runs a shorter course than Alzheimer disease, on average about 6 years (Hodges, 2003; Rascovsky, 2005).
In some individuals whose main symptoms are a disturbance of speech and language (primary progressive aphasia), the clinical course can be slow. The patient's ability to function at home may be spared for 10 or more years postonset.
History:
The onset of behavioral and cognitive dysfunction in individuals with Pick disease is insidious.
The primary impairment in cognition normally does not involve an abnormal level of consciousness or distractibility. Such a finding is more consistent with an attentional dementia (Nadeau, 1991) or a confusional state and/or dementia.
Clinical course during the first 2 years is as follows:
Psychiatric abnormalities that seem to respect the pattern of the classic frontal lobe syndromes are present (Gregory, 1996).
Patients with orbitofrontal dysfunction become aggressive and socially inappropriate. They may steal or demonstrate obsessive or repetitive stereotyped behaviors.
Patients with dorsomedial or dorsolateral frontal dysfunction may demonstrate a lack of concern, apathy, or decreased spontaneity.
Patients may be depressed early in the disease.
These mood changes can predate amnesia.
Speech and language abnormalities often begin early and progress rapidly.
Patients usually have relatively little limb apraxia and/or visuospatial dysfunction, thus distinguishing them from patients with diffuse bihemispheric impairment.
Even memory impairment is relatively less severe than speech/language and behavioral changes.
Incontinence can occur early. In contrast, continence generally is preserved in mild-to-moderate Alzheimer disease.
Parkinsonism, with its concomitant history of rigidity and gait impairment, can occur. Severe parkinsonism suggests an alternate diagnosis such as corticobasal ganglionic degeneration, diffuse Lewy body disease, or progressive supranuclear palsy.
Abnormal spontaneous behaviors observed during examination may include the following:
"Witzelsucht" or inappropriate jocularity
Echolalia (repeating the examiner's words), echopraxia (imitating the examiner's gestures [Lhermitte, 1983; Shimomura, 1998]), and other disinhibited approach or utilization behaviors
General neurologic examination may include some of the following abnormalities:
Primitive reflexes such as grasp, suck, and snout (not palmomental reflex, which is often present in healthy individuals; Sjogren, 1997)
Akinesia, plastic rigidity, or paratonia on motor examination (Beversdorf, 1998)
Resting tremor (uncommon; its presence suggests Parkinson disease or a Parkinson-plus syndrome)
Mental status/neuropsychological examination may reveal the following:
Verbal output that is often nonfluent
Most patients have difficulty in naming common objects or pictures (anomia).
Spontaneous speech can be sparse yet "fluent" in character, with preserved grammar (logopenia)
Relatively preserved visuospatial and visual orientation skills
Causes:
The specific cause of Pick disease is unknown.
In families with an inherited frontal lobe dementia (some of which pathologically or clinically were indistinguishable from Pick disease), linkage to markers on band 17q21-22 coding tau protein has been reported (Lynch, 1994; Foster, 1997) as have presenilin-1 mutations 14q21 (Rogaeva, 2001; Raux, 2000).
These familial disorders are heterogenous in different family members.
PLEASE READ MY STORY...I POSTED ABOUT MY MOTHER AND PICK'S!!!!
I'm sorry that you've had to go through all of this. It's very admirable that you've stood behind your parents despite the fact that clearly they're "not perfect", as you've phrased it. Your strength and loyalty should be good signs to your fiance that you'll be a faithful wife and mother just like you've been a faithful daughter and granddaughter. One of the toughest things we all have to face (unless we die young) is the prospect of losing our parents. My father is being treated for lung cancer so I can sort of relate to where you're coming from. All things considered he's been doing pretty well so far but I have to deal with the realization that his days are now numbered and it is difficult. So hang in there and good luck.
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