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im a ill adult female. I need help in everyday life. my mom has been there for me b4.
well..there's always been times when i could do it alone. or times when she would just "leave me" i made it only becuase i lucked out and found a peron to help me. I'm talking about cleaning/washing my hair/helping w/ shopping..etc. but now im even sicker and she is giving up on me. callingme worthless. and i feel like she's playing head games with me. i love my mom. i hate that im ill. i feel like a burden. she makes me feel even worse. how can i move on w/out her and do it by myself? but the thiing is i need help im disabled. plus she knows everything about my disease..and its rare. you have 2 have someone to go 2 dr.s apts w/ u because of it's rarity. she's the only one that knows. i don't know what 2 do. i want 2 seprate us for awhile..but i need help w/ everything. so how could I go at this w/out her. i don't want 2 but i can't take her hurting me no more i have way too much on my plate and its over flowing and i can't deal w/her hurting me.
it's as if she like to help me and then play games like help me then string me along and then throw me away and then she knows i dont have no one else and i try 2 to do all by myself cleaning etc. she knows i cant..and then she knows i have 2 call and ask her..after the fact im mad at her and hurt by her. i feel like a child. im not im just ill and disabled adult thats sicktired and hurt bad and had it.
ive tried every way possible to get get to talk to communcaite. ive told her i am grateful im glad..im happpy what she does. ive tried askingher what she thinks and she twistes my words or says i never ask or say those things. i do not know what to think or do about it but go our seprate ways.
Do you live in the USA?
What state?
Do you get SSI?
There are programs for disabled that will come to your home and run errands, clean your house and take care of your needs.
I am not sure of all the program names but I can find them.
Your mom may just feel worn out because she has to live her life doing what she needs for herself and
then taking care of your needs. She probably feels overwhelmed.
it sounds to me that it mite really get to your mum that she cant help you get better,every mother wants her children to be well and healthy and when your child is sick you blame yourself and it kills you that you cant do anythin for them
im amother and the doctors thort my son had cistic fibrosis it killed me i felt usless even tho we haddnt got the results back im glad he hasnt because i felt so bad thinkin it was myfault,was it sumthin i did,was it smokin,was it sumthin id taken[medication] you feel so useless because you cant do anythin,even when the have bugs ur gutted because theirs nothing you can do to make them better just wait it out
your mother mite feel like its her fault your sick or she mite feel bad because she cant help you and she cant make you better
if talkin to her doesnt work then rite down how you feel tell her its not her fault and that she shouldnt feel bad tell her that shes hurtin you
I guess thats my only option eh? to call for a stranger to help. i guess the goverment would do this. but i guess i dont have no other option. ive read that these ppl can be stiff and uncaring,but i guess its better than whats going on now. do i go to my states goverment site to find out info.?
If you don't get along with a worker you can call and tell them that you want somebody else
because they are not compatible to your needs or whatever.
But if you do it too many times then they will think you are being impossible.
What state do you live in?
I don't think the state government sites would have the information.
You might have to go through a disability advocate.
To get on disability you would need to go to your SSI building
but you have to make talk to your doc first and set up an appointment with them.
If you NEVER worked you should be able to get around $650. SSD. a month
it sounds to me that it mite really get to your mum that she cant help you get better,every mother wants her children to be well and healthy and when your child is sick you blame yourself and it kills you that you cant do anythin for them
im amother and the doctors thort my son had cistic fibrosis it killed me i felt usless even tho we haddnt got the results back im glad he hasnt because i felt so bad thinkin it was myfault,was it sumthin i did,was it smokin,was it sumthin id taken[medication] you feel so useless because you cant do anythin,even when the have bugs ur gutted because theirs nothing you can do to make them better just wait it out
your mother mite feel like its her fault your sick or she mite feel bad because she cant help you and she cant make you better
if talkin to her doesnt work then rite down how you feel tell her its not her fault and that she shouldnt feel bad tell her that shes hurtin you
I did. I did..i typed out many notes to her thinking that since hse wont talk that writing would be the way. no go but atleast i told her that. i think she may have other issues.. i wish i could do more but i can barbely do for me onnly i can do 4 her is tell her i love her ad thank her,but sometimes i wish she would tell me those things and that well just b my mom. soo thanks tho'
Call your county's social services department. I know several homebound people (two young and one old) who are each getting good help from an assigned caregiver/personal assistant who does errands (grocery shop, fetch the mail, etc.), helps with personal needs, does the laundry and puts the clean clothes away, and has befriended them.
If the match isn't good, you can always request someone else. Your mother might be relieved that her responsibilities have lessened.
If you don't get along with a worker you can call and tell them that you want somebody else
because they are not compatible to your needs or whatever.
But if you do it too many times then they will think you are being impossible.
What state do you live in?
I don't think the state government sites would have the information.
You might have to go through a disability advocate.
To get on disability you would need to go to your SSI building
but you have to make talk to your doc first and set up an appointment with them.
If you NEVER worked you should be able to get around $650. SSD. a month
i no how you feel mymum hasnt told me she loves me since i was 8 im 24 now oh tell a lie i mithered her for 2weeks askin why she never says she loves me or shows any affection towards me in the end we had an arguement and i sed she didnt love me n she screamed at me she did.but keep your chin up hun she does love you or she wouldnt do alll the things shes done.
maybe your mum finds it hard to express her feelins,if she tells you she loves you she mite break down and let everythin out,and she wont want to do that because she thinks she has to be strong for you and that she has to keep it together,it must be very stressful for her doin all your chores and then her own and tryin to have alife aswell
your mum does love you hun or she would of give up years ago,she probably just needs abreak aholiday or sum time to do things she likes doin,plus she mite leave you on your own so you learn to do things buy yourself because she wont always be their and your mum needs to no you can do things buy yourself just incase anythin happens to her touch wood it doesnt
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