My daughter has partial degeorge syndrome she now 13. This i know is rare. If anyone has a child who has it i would love to hear from them.

Dian1122

I have a daughter also who was diagnosed with partial degeorge syndrome shortly after birth. She is 5 yrs. old. My email is

bridie butts

Hi my son is 12 he also has this syndrome he has problems with speech is deaf in his left ear has had heart surgery but he is very good about it all excepting he is a bit different to his siblings & peers I live in Wales & am yet to meet anyone with this condition would relly love to chat

Missy2008

My Bestfriend's brother was born with it and he's almost 21 years old. I've known him since he was 4 years old, he's like a brother to me. What questions do u have??

bridie butts

hi I'd just love to know how he is is he well and is he very sociable and does he encounter many problems having this condition

jokrista

jokrista

Hello,
my name is Lee I have a daugther that has De George , she is 22yrs grat from high school, in 2005, she drives a car I was told that she would never be able to drive a car, or do anything with her life. She is going to start collage in the summer, she wants to be a chef thats what she is in scoool for. she has had open heart surg when she was 8 months old. she does have a speech problem, it's hard for to pronce the letter [r], and when gets excited about something and tals to fast i have to tell her to slow down. she can progem a computer. make her own web site. we are very proud of her, When the drs, tell that your son or dauhther can't do anything because of this , tell them about my child.
Please feel free to write me back.

jokrista

how many children have De George ?

corriehac

Cheyenne is doing fine. she is now 14, wow! My email is . Cheynne this year had one problem with an infected tooth, that she had to stay in the hospital. It is so nice to hear from so many.

zookeeper

hello I have a seven year old with partial degeorge. after genetic testing we discovered my husband also has it