At Ask Me Help Desk you can ask questions in any topic and have them
answered for free by our experts. To ask questions or participate in
answering them you must register for a free account. By registering you
will be able to:
Get free answers from experts in any of our 300+
topics.
Hi my son started shaking his head nearly 2 years ago at meal times and was very tired and grumpy all the time and waking up screaming,laughing and talking to himself.
I didn't put all of these together until around a year ago
He is waiting to see the child psycologist also and also attending speech therapy.
The head shaking only happened at meal times,He holds his left hand close to his chest most of the time in a fist,His tongue slightly out,And he make a strange noise with it,The noise breaks up into 5/10 seconds at a time
He does try to fight this when theres someone at the house thats not usually here.
When he comes round he asks ''are we going home'' ''whats wrong mammy'' ''what happend''
With him being tired all the time i decided to put a camera in his room he also does this at night shaking his head,Pulling his arm close to his chest and shaking but more than he does at meal times,faster and more viciously,He is not doing if for attention.
This is keeping him awake at night.
He wakes up crying and hes complaining of sore ankles and legs i put this down to growning pains but now im not sure.
He used to wake up screaming wouldnt let me hold him or anything,he was so bad one night i cut his baby grow off him because i thought he was really hurt,My doctor said it was night terrors.
i showed our new health nurse a video of my son at meal time shaking his head and she said he must be copying it off somebody else,we keep our selves to ourselves,that was the first time she had seen him.
i went to my doctor and she refered him for the peadiactric nurse who sent him for an EEG to see if he has epliepsy they done the flashing light test while the had wires stuck to his head and he had no fits or headshaking.
he constantly asks questions i know all kids do but he will ask ''where are we going'' ill tell him where we are going and not 2 minutes later he asks the same again and again with me telling him again and again and again.
Since he was 6 months old i have told him the colours of ever toy he had in his hand,the colour of the grass,trees,the sky ect and sang the alphabet with him over and over again and counted every step up to bed and down to breakfast non of this seems to be going in hes nearly 4 now and still cant count to 5 or tell me the colours i feel like im putting all in and getting nowhere fast.
ive tried everything books,pc games,toys,everyday objects to count and ask colours.
Has anyone herd of or seen this with another child?
someone mentioned it maybe a mild autism could anybody shed any light on this please
Asking- You asked if my son has a regular pediatrician who can evaluate his devolopement,They dont do that in ireland they see a health nurse and the older they get the longer between visits.And are new health nurse who the first time she met my son and watched the video of him at meal time shaking his head and me calling him and him asking ''whats wrong mammy'' she said there was nothing wrong with him,she didnt bother with any tests ect she spoke to him and he would not cooperate with her.Hes been seeing a speech therapist the last few months and the odd lesson he wont take part or talk to her and he knows her well.
As for the other questions which arm its always his left.
His eyes are always open.Mouth slightly open enough for the tip of his tongue to be showing,Its at least a centimeter out of his mouth.
Wondergirl-Both my sons take vitamins,eat fish ect never had a problem with them eating.I bake my own cakes,biscuits,cookies so i know what they are eating they eat fruit aswel and some vegetables,make my own soups also.
Artlady-im not to sure about Aspergers syndrome my son knows when he has done wrong he comes and says hes sorry,or if hes hurt or upset his brother he goes and gives him a hug and a kiss and says hes sorry,or when ive been upset he comes and gets on my knee and gives me a cuddle and a kiss asks why im crying or upset or angry.
Asking-When my son is shaking his head and i call his name in alow soft voice he doesnt respond if i raise it louder he will come out of it.When hes shaking his head its like theres nobody home,Sometimes it looks like hes looking at me or something else when hes doing it but hes not actually looking at anything hes miles away.I have asked him if he feels different or strange after hes been shaking his head but he doesnt know or doesnt understand the question,ive asked if his head feels funny or if he feels sick or dizzy ive tried every way i can think of to ask him.and i always listen to what he has to say even if its the 20th time in 5 minutes that hes asked the same question,and when hes rushing to say something i ask him to stop,calm down and think about what he wants to say and then tell me [he is at speech therapy because sometimes hes hard to understand].
Its ok people saying he needs to see a pediatric neurologist and sort this out as soon as possible because it could damage the brain.But the doctors here are eliminating things step by step its taken a year just to get an EEG,And well over a year for a child psycologist.His pediatric nurse doesnt seem to listen she told me at first hes copying it off someone else [we keep are selves to are selves] so this isnt the case here.she just looks at me as a over worried parent and i think i have right to be as this behaviour is not normal,she basically gives me the ''what do you know'' look,when she hasnt seen it first hand and he wouldnt do it even if she came to are house,he tries so hard to fight it when people he doesnt know are around.hes been going to nursery the last week and without me mentioning it to the member of staff working at the time after i had mentioned it to her she pointed out that she had seen his hand shaking and pulling his arm to his chest and making a fist and slightly shaking his head [he was fighting it so the other kids didnt see] sometimes i think hes aware of what hes doing and other times its like hes not.
I have explained it all in depth to my doctor,His healthnurse,2 pediatric nurses,The doctor who did the EEG.
Is there anyway i could upload a video to show you????
Cookie,
Apparently, neurologists are in short supply in Ireland. To me, your son's nurse does not sound very helpful or knowledgeable.
I doubt anyone here knows enough to tell much more than we have. Your description is very thorough but none of us is a doctor, let alone a neurologist.
I would advise that you call Brainwave, the Irish Epilepsy Association. Even if it isn't mild epilepsy, I'm hoping they will help you figure out what to do next. Their website says they have a nurse who is a specialist who can talk to you on the phone.
Brainwave The Irish Epilepsy Association
249 Crumlin Road
Crumlin
Dublin 12.
Ireland still has the lowest rate of consultant neurologists and rehabilitation specialists in Europe, the Irish Epilepsy Association, Brainwave, has said.
I have to spread the love Asking...but I think you are right on target here.
Quote:
Originally Posted by COOKIE MONSTER
As for the other questions which arm its always his left.
It's possible that the right brain is affected.
Quote:
Originally Posted by COOKIE MONSTER
Mouth slightly open enough for the tip of his tongue to be showing,Its at least a centimeter out of his mouth.
Another common symptom.
Quote:
Originally Posted by COOKIE MONSTER
When my son is shaking his head and i call his name in alow soft voice he doesnt respond if i raise it louder he will come out of it.
Has his hearing been tested?
Quote:
Originally Posted by COOKIE MONSTER
.When hes shaking his head its like theres nobody home,Sometimes it looks like hes looking at me or something else when hes doing it but hes not actually looking at anything hes miles away.
This is another common symptom of epilepsy.
Quote:
Originally Posted by COOKIE MONSTER
Its ok people saying he needs to see a pediatric neurologist and sort this out as soon as possible because it could damage the brain.But the doctors here are eliminating things step by step its taken a year just to get an EEG,And well over a year for a child psycologist.His pediatric nurse doesnt seem to listen she told me at first hes copying it off someone else [we keep are selves to are selves] so this isnt the case here.she just looks at me as a over worried parent and i think i have right to be as this behaviour is not normal,she basically gives me the ''what do you know'' look,when she hasnt seen it first hand and he wouldnt do it even if she came to are house,he tries so hard to fight it when people he doesnt know are around.hes been going to nursery the last week and without me mentioning it to the member of staff working at the time after i had mentioned it to her she pointed out that she had seen his hand shaking and pulling his arm to his chest and making a fist and slightly shaking his head [he was fighting it so the other kids didnt see] sometimes i think hes aware of what hes doing and other times its like hes not.
I have explained it all in depth to my doctor,His healthnurse,2 pediatric nurses,The doctor who did the EEG.
Is there anyway i could upload a video to show you????
Unfortunately, this is part and parcel of socialized medicine. I'm glad we don't have it here in the US. Hope we never do as a matter of fact. This nurse sounds like a quack to me, as well as the doctors he has seen.
You can't upload a video here...BUT you can upload one to YouTube and post the link here so that we can see it.
I hope we never get the socialized medicine either.
I agree with asking and J_9, he needs a good evaluation. I hope everything works out for you. I know it is hard going through something like this.
Glad we all agree --except on the socialized medicine.
I pay $1200/month for my health insurance and it's draining my savings like water out of a bathtub. I will have to sell my house at some point soon if we don't get a public option. I'm hoping I can wait until my son graduates from high school.
I pay all this money, but when I had a post surgical infection inside my abdomen after major surgery, I went to see my doctor, and she wouldn't even see me (she came out and peeked at me in the waiting room and then ducked around a corner to hide), and the local hospital wouldn't accept me either. The receptionist sent me to an emergency room in a city 85 miles away where I sat in a hallway for 17 hours before I was admitted to the hospital and given (duh) antibiotics. They were apparently afraid of malpractice, so my own doctor would neither treat me nor talk to me or help me in any way.
I would love medicare for all! If I''m going to be treated like that, I'd like to be able to keep my house...
I watched three of the videos (thanks, COOKIE!). It's definitely involuntary, and not a habit or something he is wanting to do.
When did the head shaking start? Did he bump his head badly as a toddler, or have some kind of head injury? Did anyone ever check his spinal fluid? Even as an infant did he make unusual movements?
Well it started with him talking and laughing to himself about 2 years ago, then shortly after the head shaking started.
He did have 1 fall but he was fine,no lumps bumps or anything,wasnt sick or concust or sleepy [was taken to the docs for a once over and she said he was fine].
he was fine until he hit 2 he wasnt clumsy,walked fine,speech wasnt great,no head shaking nothing.
No mone ever checked his spinal fluid,he did have a sweat test because he was always constipated and in serious pain and smelt REALLY bad.
Linear Mode
