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Home > Health & Wellness > Child & Teen Health   »   It started with head shaking

 
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Old Nov 4, 2009, 04:16 PM
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It started with head shaking

Hi my son started shaking his head nearly 2 years ago at meal times and was very tired and grumpy all the time and waking up screaming,laughing and talking to himself.
I didn't put all of these together until around a year ago
He is waiting to see the child psycologist also and also attending speech therapy.

The head shaking only happened at meal times,He holds his left hand close to his chest most of the time in a fist,His tongue slightly out,And he make a strange noise with it,The noise breaks up into 5/10 seconds at a time
He does try to fight this when theres someone at the house thats not usually here.
When he comes round he asks ''are we going home'' ''whats wrong mammy'' ''what happend''
With him being tired all the time i decided to put a camera in his room he also does this at night shaking his head,Pulling his arm close to his chest and shaking but more than he does at meal times,faster and more viciously,He is not doing if for attention.
This is keeping him awake at night.
He wakes up crying and hes complaining of sore ankles and legs i put this down to growning pains but now im not sure.
He used to wake up screaming wouldnt let me hold him or anything,he was so bad one night i cut his baby grow off him because i thought he was really hurt,My doctor said it was night terrors.
i showed our new health nurse a video of my son at meal time shaking his head and she said he must be copying it off somebody else,we keep our selves to ourselves,that was the first time she had seen him.
i went to my doctor and she refered him for the peadiactric nurse who sent him for an EEG to see if he has epliepsy they done the flashing light test while the had wires stuck to his head and he had no fits or headshaking.
he constantly asks questions i know all kids do but he will ask ''where are we going'' ill tell him where we are going and not 2 minutes later he asks the same again and again with me telling him again and again and again.
Since he was 6 months old i have told him the colours of ever toy he had in his hand,the colour of the grass,trees,the sky ect and sang the alphabet with him over and over again and counted every step up to bed and down to breakfast non of this seems to be going in hes nearly 4 now and still cant count to 5 or tell me the colours i feel like im putting all in and getting nowhere fast.
ive tried everything books,pc games,toys,everyday objects to count and ask colours.

Has anyone herd of or seen this with another child?
someone mentioned it maybe a mild autism could anybody shed any light on this please

And thank you in advance for you advice

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Old Nov 4, 2009, 08:20 PM   #21  
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One thing that is good for kids with problems that would be helpful is essential fatty acid.
essential fatty acid essential for kids neurological development and motor skills - Bing

I will have to get back to Wondergirl about what exact studies these drs have done.
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Old Nov 4, 2009, 08:26 PM   #22  
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Originally Posted by N0help4u View Post
One thing that is good for kids with problems that would be helpful is essential fatty acid.
It's been reported recently that we, especially kids, are not getting the Vitamin D we need. The RDA is far, far less than what is needed. Who knows what else we are missing, and what we are taking in that hurts and even kills us.
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Old Nov 4, 2009, 09:05 PM   #23  
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Have to spread the rep Wondergirl. Yes vitamin D is making a big come back in the media and medical field. Way back when they said we need to avoid the sun and people turned to tanning beds I said that we were going to eventually end up having a problem with vitamin D deficiencies. I am surprised it took so long for them to realize this.
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Old Nov 4, 2009, 09:38 PM   #24  
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Quote:
Originally Posted by N0help4u View Post
Have to spread the rep Wondergirl. Yes vitamin D is making a big come back in the media and medical field. Way back when they said we need to avoid the sun and people turned to tanning beds I said that we were going to eventually end up having a problem with vitamin D deficiencies. I am surprised it took so long for them to realize this.
So true! I live in Australia and for years we have been hammered with 'don't go out into the sun'. I have always been skeptical, because why would we have the sun if we didn't need to get sunlight! So everyone went around covering themselves 24/7 and now of course we have a huge problem with Vitamin D deficiency. And, we are only realizing now how important and essential this vitamin is to the functioning our or bodies and brains.
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Old Nov 4, 2009, 09:44 PM   #25  
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We used to play outdoors spring through winter (and got all our vitamin D) until our moms dragged us in at dark to do homework or chores. Now all the entertainment is in the house -- computers, game systems, tv -- and moms don't want their kids wandering around loose outdoors.

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Gemini54 agrees: So true - again. Or kids stay indoors, out of the sun, get fat and don't get vitamin D!
asking agrees: This is why people used to give their kids cod liver oil. My father had to take it when he was a kid. But then people made fun of that...
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Old Nov 5, 2009, 04:29 AM   #26  
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CM they tell us that here too. They have everybody believing that but the drs that are against immunizations have the state law immunization exemption/waiver forms for each state.
I think the others are right that it probably isn't autism in your sons case though.
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Old Nov 5, 2009, 04:51 AM   #27  
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I feel for your concern as a parent. Some of the information you provided sounds like symptoms of Aspergers syndrome.
Including the tics.
Here is a link you may find useful.
Asperger Syndrome Causes, Symptoms, and Diagnosis on MedicineNet.com
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Old Nov 5, 2009, 07:48 AM   #28  
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i ask him what happens or whats wrong or why does he do it ,ive asked him loads of different ways and he doesnt understand he just says he doesnt know
Hi Cookie,
Don't ask him why he does it or what is wrong. IF it's some kind of seizure, he has no way of knowing why it happens to him or what is wrong. Plus, it's been happening basically his whole life, so it's almost normal to him. So keep that in mind.

Instead, the next time it happens, try to answer the following questions.
Can he hear you and talk to you. Ask him something you know he knows the answer to and that he could normally answer, like a pet's name.

If he can't communicate with you during the episode, then write that down.

Ask him if he feels different than he did earlier. (Don't ask how, because that may be too much for him to answer.) Just ask if he feels different.

If he can talk during or any time after and begins to talk about it in anyway at all--when he sees you are interested in his experience of it -- don't interrupt him, but let him talk and really listen to what he says and write it down. It may not make a lot of sense, because he's four, but I'm guessing if you pay attention, there are clues to what is going on with him.

Do get an appointment with a pediatric neurologist. You might have to travel to see one, but I personally would not hesitate to do that. If your son IS having seizures, they should be controlled, as they are bad for his brain. There are lots of things that can cause seizures, so they are just a symptom. If it's not seizures, you still need to find out what it is.

To me, this does not sound like autism or tourettes, but I am not a neurologist!

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Gemini54 agrees: Great advice - I was thinking some form of seizure might also be part of what's happening.
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Old Nov 5, 2009, 07:51 AM   #29  
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PS. It's important to be able to give the doctor as much information as possible. your video tape of him sleeping is excellent. You could do the same when he is awake and having an episode, possibly have someone film that while you are trying to get him to talk to you.

You've been hitting some dead ends, but I think your instincts are right and you are doing the right things.
Good luck!
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Old Nov 5, 2009, 11:16 AM   #30  
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Have to spread the rep.
video taping is an excellent idea and all your points are good.
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